April is Autism Awareness Month

Apr 08, 2010 11:52

Just an FYI ( Read more... )

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foreverbm April 8 2010, 18:04:52 UTC
That is a staggering statistic!!

My daughter is a insulin dependent diabetic, since the age of 13 (she's now 30) and I know the rate for childhood diabetes is also rising at an alarming rate.

What's gone wrong with the world I wonder. When I was a child, none of these things were ever heard of.

I hope for a cure for all these things that affect our children and loved ones.

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mitakay April 8 2010, 18:11:41 UTC
"What's gone wrong with the world I wonder."
Yes, I wonder that too...
It definitely is a staggering statistic, and more government money needs to go towards research.

I did not know about your daughter; she's been dealing with that for a long time. Is she able to manage the diabetes with medication?

**hugs!**

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foreverbm April 8 2010, 18:15:52 UTC
She injects herself twice a day. Has good days and bad and at the moment she is doing blood tracking every day because she is starting IVF soon. It's been a hard road, especially being diagonased as a teenager, hard age without that complication.

I spent more days that I want to remember at the hospital with her during her younger years. You know what teenagers are like, doing things even though they know they shouldn't. Scary stuff as I am sure you know

*hugs back*

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mitakay April 8 2010, 20:21:31 UTC
Oh, Viv, that does sound like a difficult and scary road indeed.

I wish her all the best with the IVF; I will keep her in my thoughts.

**more hugs**

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shadownyc April 8 2010, 18:15:54 UTC
I'm with you 100%!!!!!!!!!!!!!!!!!!!

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mitakay April 8 2010, 20:10:44 UTC
Thanks, sweetie!
**hugs** to you and your family.

We actually had our CSE meeting with our school district yesterday, (to write up the IEP for the next school year)-
It was the first time that one of our meetings went smoothly; they gave our daughter all of the services that she needed...
(It only took them 10 years to get it right, *insert sarcasm here.*)

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shadownyc April 8 2010, 20:27:56 UTC
That's great! It took us 16 years.

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mitakay April 8 2010, 20:12:07 UTC
Thank so much for the support!
I feel that raising awareness is the first step in the right direction for our children.

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sjmpets April 8 2010, 19:39:36 UTC
funny you mention the cdc. my daughter is a project manager for austic studies here at the university of penn and every few months needs to go to atlanta to the cdc to turn study results. she was there twice last month.

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mitakay April 8 2010, 20:18:27 UTC
Very interesting about your daughter's studies...Do you happen to know what she's working on exactly? I am very happy to hear that studies are being done at Penn; I know the CDC keeps a close watch on autism in children.

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snowmore April 9 2010, 01:07:49 UTC
Terribly amazing figure. I know some figures go up because more detection is done now than decades ago, but it's still staggering.

Advancements are made all the time. With so many people caring, I am optimistic for great strides.

When did you find out that your daughter is autistic? She's an amazing child from what I have gleaned from your posts. :)

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mitakay April 9 2010, 01:51:20 UTC
Our daughter was diagnosed at age 2 and a half. We were told from doctors that she would never attend mainstream schools with other typical children; well, we proved those doctors very wrong: she has attended a mainstream regular education school ever since kindergarden/age 6; she is now in 6th grade/age 11, (she has the help of a 1:1 aide with her in regular mainstream middle school, she gets all A's and B's.)
We are so proud of all she has been able to do! :)

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snowmore April 9 2010, 10:24:41 UTC
I wish I could share a video of my God-son. He has dwarfism and other medical issues. The doctors didn't give much hope that he would survive after three months. He will be 13 years old this summer and has had an amazing life - travel, mainstream school, theatre, representative of the local children's hospital, etc.

Some kids are put on this earth to inspire the rest of us. :)

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mitakay April 9 2010, 12:31:51 UTC
Thank you for sharing your God-son with us. He sounds like such an amzing kid! I am sure that he and his family worked very hard to get to where they are today. It warms my heart to hear other success stories; the doctors do not always know everything...

You are absolutely right: Your God-son is certainly an inspiration to all of us; especially other parents of special needs children.

Be sure to give hime a big HUG! :)...and hug his parents, too!

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