Hi everyone. I am a mother to three handsome little boys. My youngest, Shannon, was officially diagnosed with UP at 4 months old (now 10 months.) At this time his spots are stil "countable." I have OCD (lol) so that's a big thing for me. I nurse him still so I have to be careful as to what I eat. There are so many contridicting "theories"
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You wrote this blog 3 years ago and I trust you and the boys are doing well. I am writing an article on the provision of anesthesia to children is mastocytosis. Your comment is very informative on the state that parents are often in when their children have mastocytosis. If you would like to share your comments, please let met know. I do have a lot of information that may give you some relief (as a result of 4 years following the medical literature.)
Sincerely,
Norma Klein, MD
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