I like that. I'm going to start carrying pins with me and when people ask how I feel i start sticking pins in them! hehehehehehee - Like that! and like that! But worse and i can't pull the pins out! Cranky? me? nah..... Hugs to all
And I just don't expect people to relate. I just tell them the truth, 'I am sore and tired, I am always sore and tired. So about like usual.'
I have been like this for five years and I been taking care of a medically handicapped child for three and a half years of that time. Until somebody helps me with the pain, fatigue and the numbness and dizzy spells, I can't handle more than I have right now.
have they hit you......darthlunaOctober 21 2005, 11:28:15 UTC
with "The tests results are normal!"? and expect you to be all happy? I hate that. Like 'oh hooray and now my pain will magically disapper'? Nope, still misrable and you haven't found the cause. Fibro is particularly bad as so many people regard it as fake and I fear some/many? use it as an excuse. Which means those who just want to get well have a much harder time getting diagnosed, treatment, taken seriously, etc. Getting off my soapbox now. Welcome.
Re: have they hit you......laele75October 21 2005, 19:58:05 UTC
Preachin' to the choir, luv.
Yeah, nobody can tell me what's wrong with me, besides the fibro, which doesn't explain everything.
I don't expect to get better right away. I know I will be tired and sore for the rest of my life. I can live with that. I just want all the problems explained to me, so I know what I'm dealing with. I would rather know what I'm up against and what I can do to run interference.
Because I don't just have myself to worry about. I have to be able to deal with a three year old who has to be tube fed and medicated and all the other things three year olds need. Everyday.
And thanks, good to be amongst people who can relate.
Re: have they hit you......darthlunaOctober 22 2005, 02:29:12 UTC
yep, figured you had. It's just one of my biggest buttons right now. My syptoms mimic MS, so each new doc thinks they have "solved the mystery oooo". Have you read my past test? Would you like to ask/tell me rather than running the sme danm tests and thinking your going to be the freakin' hero who figures it out? *sigh* Tho' I am suddenly grateful for my healthy 13 yr old. I am blessed with a healthy child, reasonablely understanding husband and a few supportive friends. And now I'll go hug them. :-) Blessed Be and many, many good thoughts to you and your little one.
Re: have they hit you......adidasl11November 2 2005, 05:48:37 UTC
When I first started developing the chronic pain phenomina, no one could find the source. I was even put in isolation for fear that I had menengitis or something. I was forced to go through a spinal tap (which no one told me not to move afterwards. owww!). After three days in the hospital they introduced the psych team to me. I was like, wait a minute, I am not crazy! I left soon after that, no one at the hospital could help me. I found out soon after that I had Fibromyalgia. I was 17 at the time. At 21 I developed Lupus. One day recently I went to the hospital because the pain was so bad and they actually admitted me to the psych ward to 'teach me how to cope' (apparently punching walls isn't healthy). To my surprise there were many people in the psych ward who were not crazy, just in pain. Their pain was so bad an no one knew why, medications were making people act crazy, the fact of not knowing what was wrong and getting stupid diagnosies were making people think they were crazy. It was really an eye opener that I am
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Comments 7
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Hugs to all
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And I just don't expect people to relate. I just tell them the truth, 'I am sore and tired, I am always sore and tired. So about like usual.'
I have been like this for five years and I been taking care of a medically handicapped child for three and a half years of that time. Until somebody helps me with the pain, fatigue and the numbness and dizzy spells, I can't handle more than I have right now.
Reply
Nope, still misrable and you haven't found the cause.
Fibro is particularly bad as so many people regard it as fake and I fear some/many? use it as an excuse. Which means those who just want to get well have a much harder time getting diagnosed, treatment, taken seriously, etc.
Getting off my soapbox now. Welcome.
Reply
Yeah, nobody can tell me what's wrong with me, besides the fibro, which doesn't explain everything.
I don't expect to get better right away. I know I will be tired and sore for the rest of my life. I can live with that. I just want all the problems explained to me, so I know what I'm dealing with. I would rather know what I'm up against and what I can do to run interference.
Because I don't just have myself to worry about. I have to be able to deal with a three year old who has to be tube fed and medicated and all the other things three year olds need. Everyday.
And thanks, good to be amongst people who can relate.
Reply
My syptoms mimic MS, so each new doc thinks they have "solved the mystery oooo".
Have you read my past test? Would you like to ask/tell me rather than running the sme danm tests and thinking your going to be the freakin' hero who figures it out?
*sigh*
Tho' I am suddenly grateful for my healthy 13 yr old. I am blessed with a healthy child, reasonablely understanding husband and a few supportive friends. And now I'll go hug them. :-)
Blessed Be and many, many good thoughts to you and your little one.
Reply
Reply
Its hard, I know..
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