Comments | ljlee: Little Boy with Rare Disease Inspired by Aang

ljlee

Little Boy with Rare Disease Inspired by Aang

Aug 11, 2011 16:26

Yesterday I read this three-part Pulitzer Award-winning article about Nicholas Volker, a then-five-year-old Wisconsin boy suffering from an extremely rare, extremely serious disease, and how the race to save his life lead to the first-ever sequencing of a patient's entire genome. Well actually 1% of it, the exons that are responsible for producing ( Read more... )

real life, kids, aang, fandom

Comments 2

anonymous August 12 2011, 01:07:44 UTC

What a great story! Fiction inspires and helps turn people into real life heroes. Nic is a very courageous boy! I knew the M. Night movie was good for something. ;-) Here's hoping Nic does get to see more TLA as he grows up healthier and happier.

FLZ

ljlee August 12 2011, 04:20:55 UTC

I was really enjoying the science writing with the very sympathetic human story at its core when I was got all OMG AANG!!! If nothing else, at least the movie gave the characters and story a wider exposure, for instance to kids like Nic. For that I can forgive Shyamalan. :D Thanks to his efforts, soon, very soon young Mr. Volker will be one of ussss... yesss...