M.E/Fibromyalgia Awareness Day

[joeybug]

May 12th is M.E. awareness day...it's a condition, I and many many others suffer from...

Please show support by putting a blue ribbon in your userinfo:

Comments

[elaryn]

I have several friends with fibro. I'd be glad to post the ribbon and link to this entry. *gentle hugs*

[joeybug]

Thanks, I do this post every year (except last year because I was in hospital) and very few people respond, so thank you for taking the time to do so!

[sodiumbisulfite]

I'm putting it in my info :)

[joeybug]

Thanks, I've changed the link so it will now link back to the first time I made this post back in 2005 or something :)

[nixtress]

Here I am!

[joeybug]

Cool, just didn't want to explode bobbysan's inbox with ranting

[nixtress]

My Dr (who could not be farther from any sort of specialist if he wanted to be) has been AMAZINGLY patient with me, and has been learning about it all as I have. I was lucky enough to be part of a Pfizer-funded study with Gabapentin being used as a sleep-aid. It was then that I noticed how well it helped my nerves ache less. He made me wait for the study results to be published, and then he was willing to prescribe it to me for both help with sleep and help with the nerve pain. I'm his first patient with fibro (or who knew they had it

[joeybug]

I understand the whole major stress causing a flare...last december a dear friend of mine died suddenly...she has severe ME, she was bedbound, tube fed, paralysed and couldn't speak...her mother help her kill herself after 17 years of being like that and the government has now said she should be charged with attempted murder...trial is probably going to be before the anniversary of Jessie's death. Shortly following that, another friend died of a mitrocondrial disorder that should have killed her years before, and then in January a friend of mine died from type one brittle asthma - which is considered terminal and I also have that. I flared big time during my time of grieving

[gemsy_iii]

I've had the ribbon in my user info pretty much since I've met you. *squishes*

[becoming_rachel]

I'm putting this in my user info. An important post...thank you.