Stuff

[joeybug]

Ok...so after browsing through other people's diaries and seeing so many links to them from boards I thought I would do one myself. I figured that the first thing I should do was explain what all the diseases in my bio mean...since I seem to be the only walking medical dictionary that I know of

Comments

[slartibartfast]

I've seen a couple of your posts at adayinmylife and I think you seem really interesting. I'd like to add you, if that's okay?

I have M.E. too, I'm right there with you on the muscle aches that hurt like hell. And all the other stuff, except at the moment my concentration skills are on the increase, which is nice. :)

[chaoskir]

Hello, I want to say that I be caught from your Story "Set me free". You´re a great author and I want to read more. Set me free I read (only part one, because, I don´t know, how I can find part two) fourth and you able to make me smiling, crying and feel a lot of emotions by every fourth reading. That´s so great, I can´t describe it in your language. Sorry, for my bad english, I´m stupid and not a owner of the stuff calls brain. And by the way I list you as a friend. If you don´t want this tell me and I delete. And I read your explanations I hope I understand your declarations right but maybe if I write here stupid or bad with this comment. Than I appologize for this. I only want to say thank you for your great story. I know, it´s not important but I thought it was. Now I´ll searching more from you. I hope I find a lot.

[joeybug]

If you live in the USA, "brittle asthma" is referred to as "severe persistant asthma" so if you have that, you have the same type as me. I spend a lot of time in hospital and have a continuous infusion as well as daily nebulisers.

I've added you back :)

[joeybug]

My last hospital admission landed me in the ICU for a week, hence why I'm dropping classes at uni. They told me I would grow out of it too (I was diagnosied at 18 months) but when I was seven it turned into brittle asthma and I've been fighting the good fight ever since, I then got M.E and FMS diagnoised when I was 19, though no one is sure how long I've had it, they think about seven years, possibly longer for the FMS.

It sounds like you have what we UK'ers called type two brittle asthma which is controllable with drugs and thankfully, not terminal, though rarely, cases of type one aren't too, I was just unlucky to get ME and FMS on top which added to the strain on my body and well, you can guess the rest!

hmmmm

[alannakitty]

"muscle cramps that hurt like hell, an inability to concentrate on things that I found easy before, like small text - before I read like it was water and now I have to check the font size in the book before trying to read, if it's too small then I can't focus long enough to read it, it kinda sucks, brain fogginess, an inability to find the right word at times, muscle weakness"

Sounds really familiar. I was diagnosed with Sleep Apnea but I'm not sure that can explain the symptoms I've been having. I'm having really bad muscle cramps. Esp. in my shoulders and arms. It started over a month or so ago. But I was under EXTREME mental stress. Not sure what is still going on. I haven't been in any accidents or hurt myself. So... I don't get why I'm having this pain. I had to take a muscle relaxant at work today. Talk about being in a brain fog and it only reduced the pain not got rid of it.

You are really brave. I don't know that I could be so upbeat with everything you have going on. *hugs*

[topknot_dear]

I don't know how this is going to sound polite or not, but this was a very interesting read. I really appreciate it when people make posts like this readily available on their journals, because I feel like the more you know about what someone suffers with, the more you can celebrate with them when they have a good day or an accomplishment! Plus, when you mention these things in passing I don't have to ask questions you probably have had to field a thousand times before.

Does that make any sense?

[joeybug]

It does make sense and I usually ask every new friend to read this before they add me so that if they can't cope, they don't add me, but also so that they know what I'm talking about in my entries, so thanks for reading this without prompting :D

[topknot_dear]

Absolutely!