I received the news yesterday that Joost has gone into decline. He suffers from severe epileptic fits almost every day, and the chemo has been stopped. All care now will be strictly palliative.
We've known this day was coming for a long time. Still, now that it's here, it's really hard to accept that this really is it, and there's nothing more that can be done for him.
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I hope his last days are as painless as possible. :(
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Kathleen
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