Hi! I'm new. I have my story and some questions. Hope that's cool.

[pinkpanther20]

I'm new, and I figured I'd share my story with you all, and ask a question or two. I hope that's cool.  I'm Meg and I'm 17. I was diagnosed with fibro two years ago. I'd been sick for a while--migranes, anemia, various colds/flues, etc. No one knew what was wrong. At first, when I was diagnosed with migraines in my sophomore year (I'm a senior now

Comments

[albinoqueen76]

I hate to hear someone so you being diagnosed. I was diagnosed about 2 years ago, at age 32, after being thrown from a horse triggered the symptoms to be bad enough to be diagnosed. When I think back, I really had symptoms back in my teen years

[pinkpanther20]

I've never heard of savella, I take lexapro and neurontin. And yeah, a bunch of vitamins and whatnot. Your husband sounds cool. :) I try not to walk long distances too, except our senior lot at school is way over at the other end of the universe, so I have to walk that everyday. Seriously, seniors should get the parking that's closest to the school!

<3

[amber_fool]

I was lucky, in that my fibro is very manageable with meds (lyrica and tramadol right now, with some experiments to try to control migraines, and I may try to swap out the lyrica for savella or cymbalta, something that doesn't make me as tired

[pinkpanther20]

I've heard tai chi is really good! My Mom's been trying to get a workout tape for that, and also for yoga. My mom did yoga for a while, so we still have the mats and stuff for that, which is nice. :)

<3

[amber_fool]

If you have the option, try to find an actual instructor. Mine is part of a martial arts studio (T'ai Chi is actually a martial art, but doesn't have the sparring or anything like that), so those are good places to look. It's been very helpful to have someone who can look at what I'm doing and tell me if it's right. I think a lot of people try the videos and it doesn't help them, or it hurts, so they stop, but it's because they didn't do the forms right. Plus, my instructor has experience teaching people with illnesses and injuries, so he can adapt the forms to my body if needed. He actually taught what he could to an MS patient in a wheelchair! But you need someone who knows the forms well to be able to adapt them for you.

[awolfcalledskya]

So nice to meet another young person with Fibro

[pinkpanther20]

I actually already take a big fibroplex vitamin with magnesium in it! Yeah, basically I go to school, come home, sleep, homework, more sleep. Sometimes I go out on the weekends, but not much. I just get so achey and tired.

<3

[awolfcalledskya]

Aaah, good stuff! =)

And yeah, that's about the regular routine here, especially at the moment. I just got up, and it's 3pm. =S And I'd still love to sleep more.

hi

[tatredbutrfly]

I don't know how your school system works where you are, but you need to check into how they can aide you with your disability. I know here the school writes out an individual plan for the students with disabilities. Like for instance a student with adhd would receive less homework in each subject because they have

Re: hi

[pinkpanther20]

My school has given me a 504 plan which lets me get around a lot of stuff. I've tried typng it out, but typing for too long hurts as well. I tried provigil, and it made me crazy--I couldn't stop shaking and bouncing. I take lexapro and neurontin, with ambien to help me sleep at night.

<3

[xlucy_intheskyx]

Hi Meg

[pinkpanther20]

Urgh, I didn't like Cymbalta either--it didn't help me much at all. I take lexapro and neurontin now, and they work quite well for me. I'm lucky in the choir is one of my loves, and it's pretty low-impact. I still have to sit in a chair while everyone else stands, but that's not a hassle, my teacher's totally cool. :)

<3

[albinoqueen76]

I had a similar experience with my community theater. I did my first show since developing fibro, Jeckyl & Hyde. I was just a chorus member but was also suppose to do some big dance numbers. When I found it was too much for me (oh, and the stage lights triggering migraines now!) I was heartbroken. Our director was my dad and the musical director was a 18 year old whom I have done theater with since he was about 10. I approached them with the problem that the dance number were just too much. Cam, our musical director, got wide-eyed and said "PLEASE DONT DROP OUT!!! I NEED YOUR VOICE!!!" We came up with the solution that I was "designated singer". I sat either in the pit (for rehearsals) or the sound booth (for performance) and all I did really was sing the chorus parts. During rehearsals, while the other chorus members worked on dance numbers, I sang the part they were dancing. It is great when people are willing to work with & around you and you can still feel part of things!!!