could be bothashenphoenixDecember 7 2009, 08:47:59 UTC
despite the number of times that I've been told that fibro is not a progressive disease (ie: doesn't get worse), I feel my fog is worsening. Or maybe I just don't remember anything but the bad days anymore (ha). I *do* know that lyrica "ate my brain" - not as badly as the neurontin I'd been on before, but still...I had great pain control with lyrica, but I was just too stupid to function! It (the stupid) seemed to get better after the first couple of weeks, so I'd suggest you try to stick it out - we all seem to have a unique set of symptoms and side effects; so YMMV. There are also supplements that seem to help with the fog. I've been a promoter of phosphatidlyserine, but many others on the list like many different things - again YMMV. But the lyrica *could* certainly be the culprit. It's just such a battle to match cause and effect, when *any* day could be bad or good, depending on reasons we don't often understand. Good Luck!
I would ask the doc if that's a side effect of the Lyrica as I know it was something i also experienced, a worsening of brain fog and word finding.
Also, believe it or not I used to be very good at writing. I was raised by an english teacher, who later got her masters in teaching children to write literature, and she spent a lot of time preparing me, so by the time I went to college I had a few things published. But when the fibro hit at 19, I would find sometimes I would go back and look at things I'd written and they didn't make sense. Tense changes, pronoun misuse, basic stuff. This may even do that. I find it happens more often when I am overly tired (it's 2 am now so who knows if this will make sense)
I've found, since the fibro got worse, all my thinking is muddled. I used to take part in lots of intellectual conversations and was quite good at writing. Now I find it hard to follow a normal conversation. My dyslexia has got much worse and I have trouble finishing a sentence.
Meds can really make things worse though. I get really bad fog when I first start on most meds. I was on an antidepressant that made is so much worse. I ended up having to give it up as I couldn't drive at any point while on it.
Give it a week or two for the meds to settle at the new level and if you still have problems go to the doctor.
I don't know that I have much to offer in the way of easing your frustration. I just wanted you to know that you're not alone in your fear. I'm right there with you.
All I can say is, just because we experience the Fibro fog doesn't mean we should stop attempting to exercise our brains.
My brain was the one thing about me I kinda liked, and now... I feel so feeble minded. Poker is one of my passions, but lately I'm making stupid beginner mistakes that are so behind where I was.
Just... don't give up. Keep on keeping on.
I'm trying something called Phosphatidylserine. After about 2 weeks, I noticed a stark improvement. However, the last month or so, the fog has been horrible. I've upped my dosage & I'm hoping to see the light. :P (I order mine from Puritan's Pride.)
Comments 7
I *do* know that lyrica "ate my brain" - not as badly as the neurontin I'd been on before, but still...I had great pain control with lyrica, but I was just too stupid to function! It (the stupid) seemed to get better after the first couple of weeks, so I'd suggest you try to stick it out - we all seem to have a unique set of symptoms and side effects; so YMMV.
There are also supplements that seem to help with the fog. I've been a promoter of phosphatidlyserine, but many others on the list like many different things - again YMMV.
But the lyrica *could* certainly be the culprit. It's just such a battle to match cause and effect, when *any* day could be bad or good, depending on reasons we don't often understand.
Good Luck!
Reply
Also, believe it or not I used to be very good at writing. I was raised by an english teacher, who later got her masters in teaching children to write literature, and she spent a lot of time preparing me, so by the time I went to college I had a few things published. But when the fibro hit at 19, I would find sometimes I would go back and look at things I'd written and they didn't make sense. Tense changes, pronoun misuse, basic stuff. This may even do that. I find it happens more often when I am overly tired (it's 2 am now so who knows if this will make sense)
Reply
Now I find it hard to follow a normal conversation.
My dyslexia has got much worse and I have trouble finishing a sentence.
Meds can really make things worse though. I get really bad fog when I first start on most meds.
I was on an antidepressant that made is so much worse. I ended up having to give it up as I couldn't drive at any point while on it.
Give it a week or two for the meds to settle at the new level and if you still have problems go to the doctor.
Reply
All I can say is, just because we experience the Fibro fog doesn't mean we should stop attempting to exercise our brains.
My brain was the one thing about me I kinda liked, and now... I feel so feeble minded. Poker is one of my passions, but lately I'm making stupid beginner mistakes that are so behind where I was.
Just... don't give up. Keep on keeping on.
I'm trying something called Phosphatidylserine. After about 2 weeks, I noticed a stark improvement. However, the last month or so, the fog has been horrible. I've upped my dosage & I'm hoping to see the light. :P (I order mine from Puritan's Pride.)
Reply
Reply
Leave a comment