i originally posted this under the default friends lock (which you may still comment on if you want privacy) however for those who want to share it, or point others not on my friends list to it... here it is
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I get it and am so on your side. I burned out @ age 19 w/ nobody to help or understand what was happening. Not that long ago, my end of the illness spectrum had no supporters, and the most I could look fwd 2 was being the butt of other people's jokes--if I ever told them. So I had to come up w/ answers all by myself.
nod. and it makes it SO MUCH harder! well, i went through far too much of the "you are not really sick" and the rest of it. feel free to link or whatever luckily some more education is getting out there, but its a long slow road
i'm honestly absolutely agreeing with the idea of talking about the invisible disability to get it OUT there, and have people be AWARE that they never know what's going on with their fellow human beings.
and...tell your children. it is IMPORTANT that they know their family medical history. it's important that they know if their parents have drug sensitivities/drug allergies...because those can be genetic, too.
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we gotta stick together, you know?
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well, i went through far too much of the "you are not really sick" and the rest of it.
feel free to link or whatever
luckily some more education is getting out there, but its a long slow road
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and...tell your children. it is IMPORTANT that they know their family medical history. it's important that they know if their parents have drug sensitivities/drug allergies...because those can be genetic, too.
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