Decidedly ghastly "study" on ME/fibro

[elettaria]

How a Patient's Understanding of Their Illness Impacts Health Promoting Behaviours in Patients Living with Fibromyalgia, Chronic Fatigue Syndrome and Myalgic EncephalomyelitisNo, don't fill it out. Go and read it over, make sure you don't click "continue" from the page which asks what info was provided by your doctor as that will automatically

Comments

[cloudsinvenice]

Looks like it was taken down - I just get LJ's link-not-working page... I didn't see it earlier, but from what you say, I hope it's gone down because the university realised it was inappropriate...

[elettaria]

Nope, I just buggered up the HTML. The link should work now.

[shehasathree]

Gah. Don't have the time+energy units atm to submit the info required to get past the first page. Is it the usual nonsense about 'faulty illness beliefs' etc?

(I am always tempted to fill these things in - I do have a fibro dx, along with a bunch of other stuff - just so that I can defy their expectations.)

[elettaria]

For starters, the page on assessing healthy lifestyle is clearly a questionnaire for people in good physical health, so that the "healthy" markers include things like engaging in energetic aerobic exercise three times a week (er, have they looked at the diagnostic criteria for ME?), or eating the recommended food groups the recommended amount (because it's not as if GI symptoms are a part of these illnesses), and even includes a question on how you balance work and play (again, most people with ME are unable to work). Then it moves on to a standard mental illness page, where many of the markers for mental illness could actually be due to the physical problems caused by these conditions e.g. being unable to enjoy former hobbies or socialise. There's more, I just don't have the spoons to go into it. As far as I can tell, if you don't lead a "healthy" lifestyle by the standards of someone who is already healthy, then you will be marked down as having a mental illness. So very wrong in so many ways.

[shehasathree]

Thanks for taking the time to reply. How depressing that students are still being indoctrinated into this way of thinking.