latest update...I know what I have

Jun 29, 2009 13:52

I have Type 2 Neurofibromatosis (NF 2). IT IS NOT CANCER!! It's a genetic disorder where I have tumors along the central nervous system. Several treatment options..will probably decide in a few weeks when we have everything in front of us

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boltofblue June 29 2009, 21:47:06 UTC
What a relief that this is not cancer! My thoughts are with you and your family as you now learn about what you do have and what the courses of treatment are. I hope nothing is too invasive or scary. All the best!

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docwash June 30 2009, 04:06:00 UTC
The gamma knife is a good possibility. 1-2 tumors meets the size criteria.

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malakhai June 30 2009, 02:54:12 UTC
So glad it's not cancer!

*hugs*

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