Okay, so this journal won't be a mass of self pity and misery, I promise. But, I also feel it's important to enlighten the general public about the rare disorder I have. So
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Hi there. I wandered your way and found your journal. I also have EDS Type 3. I am currently volunteering on a newsletter that pulls together links to EDS news and blogs and medical info on LJ. More here: http://edsalert.greatestjournal.com/
feel free to pass the word around to anyone else who knows (or wants to know) about EDS.
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feel free to pass the word around to anyone else who knows (or wants to know) about EDS.
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