Zoe - FINALLY a diagnosis! Please watch videos.

[cosmicity]

Hooooooray for the University of Michigan hospital. In about 15 minutes this morning, the doctors at U of M were able to do what none of the other doctors or hospitals have been able to: diagnose Zoe with SANDIFER'S SYNDROME

Comments

Zoe's Diagnosis

[anonymous]

Mark, and Family -

Congratulations on what has got to be the best possible result of all of the trauma Zoe, and you, have been put through over the last few months. I've been quietly watching for updates, and am overjoyed for you at what must be the most extreme kind of relief.

I feel badly that she is still suffering great discomfort, but now you know that one day you can look back and say "suck it up kid, you've battled worse!" ;)

Best wishes.

Jason Finn

Re: Zoe's Diagnosis

[cosmicity]

Thank you, Jason. And yes, I'm probably the happiest father of a baby with a milk protein allergy, severe acid reflux, and sandifer's syndrome in the world today because after being worried about your baby's brain for so long, all the treatable physical stuff seems like nothing. :-)

-m

[chrisrohn]

I am so glad to know Zoe is going to be fine! Yay!

[cosmicity]

Thank you, us too! Woo hoo!

-m

[bizarre]

why are sneezing babies so darn cute?

I am really glad that you and Sara finally have some answers

[cosmicity]

They are, aren't they? It's all the involuntary stuff she does that actually seems the most adorable. We also melt when she smiles in her sleep. So cute.

[bizarre]

babies smiling makes me turn to goo!

Since my niece has started cooing and smiling I find myself grinning like a fool even when I am only looking at photos or watching video of her :)

[miss_ania]

That's fantastic that you found out what it is!! :)

Is it going to stop looking seizure-y when she's conscious enough to realize that something is hurting her? Also, does this mean that you can be off the really expensive formula, or is that a different issue?

[cosmicity]

It may continue to look seizure-y for quite some time. It really depends on how long she has the reflux problem and how bad it remains, as well as her general neuological development. She is running a little bit behind the curve because of all of the crying and poor sleep, so that might mean she has these symptoms longer.

I don't think she'll be eating normally for a long time either. The expensive formula is still a must because Zoe still has the milk protein allergy. Other formulas have all resulted in severe constipation and blood in her poop. Until she outgrows the milk protein allergy, we're kinda stuck on that formula. (And they're not letting her start on any other solid foods yet because of the reflux. One of those bummer situations where those two factors combined have us kind of locked down.)

-m

[dj_spider]

How wonderful to know what it is -- and that it's treatable! Huzzah!

[cosmicity]

Thanks, yeah... we're psyched.

-m