REALLY BAD DAY

[badly_knitted]

As some of you know, on top of physical health problems I also suffer from agoraphobia and panic attacks, I have OCD (usually reasonably under control), and a bunch of phobias. My home has always been my sanctuary, the place I can get away from the world, a safe environment that I have control over

Comments

[timelordshines]

*hugs*

I'll email you properly when I finish work

*still hugging tight*

[badly_knitted]

Thank you *hugs back*

Without my online friends I'd be a basket case by now.

[badly_knitted]

Someone's been in who I've talked to about what the carers' responisibilities are, she's very understanding and is going to sort things out. When we get out permanent carer team things will be better, at the moment it's different people every 3 days.

A lot of people simply don't understand about mental health problems and how distressing they can be. My own father never understood. There's just too much stress at the moment and I'm struggling to cope.

*hugs* Thank you.

Sendng you hugs!

[aviv_b]

I would be rewashing everything if someone dried my dishes with the floor rag.

Could you label stuff - like put a post-it-note by the cloth to dry dishes and the one for the floor identifying which is which? This is what I do with my cat sitter. (She's sweet and loves my cats, but sometimes a bit clueless).

Re: Sendng you hugs!

[badly_knitted]

I may end up having to resort to labelling everything.

Right at the start I said that they were only responsible for mum's needs and that I would do the dishes and laundry, but I guess she didn't remember that despite the fact that she was the one who did the original assessment.

Hopefully when we get our permanent team of carers things will be a bit better, I can train them properly so that they only do what we need them to do.

At least no one comes into my room unless invited. Except mum, who has never respected my privacy even though I respect hers.

Thank you *hugs back*

[magikalrhiannon]

*HUGS* I really feel for you babe. I know exactly what it's like to have people coming in and out of your space, and doing things differently to how you would do it. Reminds me of when we were caring for Mum last year when she was at home with Hospice help. Lucky for us, the nurses were extremely accommodating and willing to change anything to make us and Mum more comfortable, as well as asking for things before hand, and leaving things like laundry and dishes to us.

It's just common courtesy, I think, to ask beforehand. And to brush aside your feelings like that - it's not being dramatic! It's a freakin' medical condition, FFS. And being a nurse she should know that! For the love of... the descriptions you're giving remind me of the annoying district nurse, the mother of the teenager from "Frankie".

*HUGS* I hope it gets better, babe.

[badly_knitted]

*hugs back* Thank you.

I think things will get at least a bit better once we get assigned a permanent team of carers and they learn the dos and don'ts around here, but right now it's different people every three days and with all the other stress I'm having trouble coping. Everything is focussed on mum and I think people tend to forget that I have problems too. It's exhausting just trying to remember who knows what. They're supposed to leave notes for each other, I'm almost scared to read what might have been written about me after this morning.

[iolo1234]

So sorry to hear about things. People simply don't understand and some deliberately try not to. I have a few OCD tendencies about lining things up right and putting towels over a rail right but nothing major even so I get as irritated as hell when people move them so it must be terrible for you. You would think that having been told that they would listen. Perhaps you could try labelling everything.
*Hugs*
K
x

[badly_knitted]

If I start labelling things I don't know if I'd ever stop.

I had a talk with the leader of mum's occupational therapy team who wanted to see if the carers were filling our needs - we don't have a permanently assigned team yet so it's a new person every three days. Anyway, at least she was understanding and said she'd look into things and make sure the entire group knows to leave the dishes etc. Thing is, the one who was washing up was the one who'd done the original assessment and I'd said then that I wanted washing up and laundry left to me. I read what she wrorte in the daily log today, apparently I 'had a right go at her' and she told me to 'ask politely', apparently she can't tell the difference between someone who's a bit cross and someone suffering extreme panic and distress. This is my home, she's the one who should ask and I DID say 'Please don't'. Guess that wasn't polite enough.

*hugs back* Thank you.