The Letter from Survivors

[amorsalado]

I'm not usually up on a soap box about this. In fact, I'm really not up there now. For the most part, my friends, family, and doctors are all understanding and caring people who at least make an attempt to sympathize. Every once in awhile though, someone says something so utterly astonishing and/or hurtful, that I'm left completely without reply.

I

Comments

[qualanqui]

What a wonderful letter. It saddens me that people don't understand this disease. Even though I do not have endometriosis, I understand what it is and how it can affect people. It's not fun, at all.

Although, people get the same way about MS sometimes. Just because I look okay on the outside doesn't mean I'm not ready to drop with exhaustion on the inside some days. It goes beyond just "being tired." And I never talk about the way my legs don't work the way they used to, or the fact that I have lost some bladder control and that the toes of my feet are pretty numb. That a lot of times I wonder when the next attack is going to hit and what nerves I'm going to lose.

I'm sorry - I didn't mean to make this about me. You've been through more than I ever will. I hope this letter helps educate some people.

[axejudge]

More shocking was the information listed below the letter - some of which I am only too aware