one is the loneliest number

[65redroses]

at first i felt alone because i didn't know anyone else my age who was sick

Comments

[ladymysla]

I am always here on facebook and gmail chat if you ever want someone to talk to. I am always available to talk. You have always been my inspiration when I have needed someone, and I want to be able to do anything if you need it. Stay strong *hug*
<3

[roseofaurora]

I don't honestly know you very well at all. We've only just met!

But I know Kina.

And I've lost friends to CF in the past.

I don't know what it's like and you're right, there is only so far I can relate. Only so much I can understand. There is no helping it.

But despite that, I will try to relate and try to understand.

And beyond that I will stand ready to prop you up with words and prayers and hope and if I was where you were I would physically do what I could as well.

I will stand with you and Kina and all the other CFers I know and the nameless thousands I don't. I will listen and learn and I will tell your stories.

I will add my voice to yours in solidarity, even though I can't fully understand what it is your are going through. You have my support, unfaltering and unquestioning, for whatever it's worth. I'm here =)

[glitterymascara]

You are amazing. Your ability to be so positive inspires me.
I love you, and keep fighting.
Please let me know if you need me to do anything. I'll do whatever I can to help you on this journey. I'll drive up to you in a heartbeat.
You've helped me so much over the years, I hope that I can find a way to help you.

[lotus82]

I'm not on the list yet, but I'm really close. I'm very much unstable, when I'm sick my FEV1 dips as low as 30 and even post-IVs I'm still only in the 40s and can't keep it up for long. I need IVs every 2-3 months. My drugs don't really work anymore - I have two IV drugs that work but I'm terribly allergic to them, so it's an issue, and the one I'm not allergic to doesn't do much for me. So I've had the big T-word thrown at me from time to time, but I haven't been officially told "go sign up". I'm expecting it to come sometime in the next year, honestly.

I know a girl here in Israel who's had a second transplant. She's doing good, from what I hear. She had a rough time actually getting it the second time around because in Israel, because of the religious folk we have a huge shortage of donors, but she got her lungs eventually.

[daydee]

You and I are in pretty similar spots... my last FEV1 was 31% and I wasn't even that sickish. My doctors say that if they were to consider my numbers alone, I probably should be evaluated... but I only need IVs about once a year and am still fairly active, so my lifestyle says that I'm not there yet, but they caution that it may only be one infection away at any time.

[spirit_of_kina]

My heart was racing reading this, and my body grew numb and heavy.. Like my spirit leapt out of my chest to go hug you, and brush off your lungs