Comments | 65redroses: i promised myself i'd post more

65redroses

i promised myself i'd post more

Sep 05, 2009 02:23

i'm sitting in my parents basement at 2:24 am ( Read more... )

Comments 34

tori_x September 5 2009, 12:48:39 UTC

Stuart sounds like an amazing guy I'm hopeful one day I'll find someone just as loving and kind!!

Your a strong girl and I know you can handle all this but I'm sending all my love and positive healing vibes your way.

Love V xx

65redroses September 6 2009, 00:18:48 UTC

Thank you! The british are a very special bunch!

wander_lost September 5 2009, 13:43:10 UTC

a fried of mine is in a similar situation, post tx, FEV1 in the twenties, sometimes on 02, he did the steroid bit and a few other treatmetns (one with rabbit antibodies or something??), if you'd like I can give you his email and you can talk to him about what he has been through, I know he is always happy to talk with other TX patients, and while he might need that 2nd tx, the steroids and meds have helped hold that off for a year now. Your vibrancy and will to live will only help you in this, stay as positive as you can and know I am thinking of you!

65redroses September 6 2009, 00:18:27 UTC

Thank you! Could you pass it along? I'm finding that any info is helping right now. It's a whole new world of decisions and complications. I appreciate it!

wander_lost September 6 2009, 23:51:05 UTC

I talked to Paul and he is happy to share whatever info he can with you - you can find him on my facebook flist, Paul Mooney, and contact him through FB or I can send you his email, whatever you prefer.

elbiesee September 5 2009, 13:56:09 UTC

Give Stuart a hug for me. He sounds amazing.

And you are still in my thoughts. I wish that, despite the physical distance between us, I could do more...

65redroses September 6 2009, 00:17:29 UTC

Thank you! I can feel your hugs from here!

nicholeipickle September 5 2009, 14:30:25 UTC

Wow, Eva. You definitely always have been "special." :) You'll be in my thoughts. This all sounds really tough but you still seem fairly optimistic through it all.

By the way, steaks, underwear, and Bring it On? Sounds like someone gave you lemons that night and you made a night of some awesome lemonade.

65redroses September 6 2009, 00:17:10 UTC

Very very sweet lemonade. I am a lucky girl indeed!

evershnooks September 5 2009, 15:10:24 UTC

Stuart sounds very kind and patient :)

I didn't know they did re-transplants even! That's incredibly interesting. I told my boyfriend about your dilemma and he asked about doing a second transplant. I wasn't sure how to answer him because I've never heard of people doing second transplants before.

Everything will go the right way Eva - even if things go wrong and go downhill there's always an up.

65redroses September 6 2009, 00:15:26 UTC

Thank you. I didn't think they did them in Canada either. I would be only the second if it comes to that. I'm hoping it doesn't.