Hey, thanks so much
Dear All
Thanks so much for writing to me. Leo is better in himself again today, though still not moving at all. He doesn't want to be touched, or stroked or held. Obviously everything hurts. Bloods better again this morning - and if this keeps up, he'll be able to do the next month of chemo starting next week.
The increase in survival rates is not due so much to better treatment, but the improvement in keeping children alive whilst undergoing chemotherapy apparently. Leo's particular chromosomal abnormality (from my reading) is likely to mean that he struggles more with the chemo - he should still get there, but it will be a harder ride than some children have...but he should get there.
Megan is so determined. It has always been one of her cardinal qualities - she's compassionate, she loves to give - but she is so determined. She is determined that Leo will get through this. She is running on very little sleep right now - with beeps waking her to get the nurse all night - but she is in there with him, playing games, getting the food just as he likes it...he is eating well, and this is apparently importnat. Children who don't eat and put on weight don't have such a good prognosis. Megan has always ensured that he has catholic eating tastes, and I think that will help as chemotherapy alters how things taste to him....and finding things over which to giggle.
Today they've been playing with helium filled balloons. He will not reach out to touch them, but he directs her, and they are mobilzing the toy rabbits through the room on balloons. I've sent her the instructions for how to make the ziploc bag squish paints.
Thanks for listening.
Thanks so much for writing to me. Leo is better in himself again today, though still not moving at all. He doesn't want to be touched, or stroked or held. Obviously everything hurts. Bloods better again this morning - and if this keeps up, he'll be able to do the next month of chemo starting next week.
The increase in survival rates is not due so much to better treatment, but the improvement in keeping children alive whilst undergoing chemotherapy apparently. Leo's particular chromosomal abnormality (from my reading) is likely to mean that he struggles more with the chemo - he should still get there, but it will be a harder ride than some children have...but he should get there.
Megan is so determined. It has always been one of her cardinal qualities - she's compassionate, she loves to give - but she is so determined. She is determined that Leo will get through this. She is running on very little sleep right now - with beeps waking her to get the nurse all night - but she is in there with him, playing games, getting the food just as he likes it...he is eating well, and this is apparently importnat. Children who don't eat and put on weight don't have such a good prognosis. Megan has always ensured that he has catholic eating tastes, and I think that will help as chemotherapy alters how things taste to him....and finding things over which to giggle.
Today they've been playing with helium filled balloons. He will not reach out to touch them, but he directs her, and they are mobilzing the toy rabbits through the room on balloons. I've sent her the instructions for how to make the ziploc bag squish paints.
Thanks for listening.