Apr 25, 2007 22:59
It has a name.
Many of you know that I suffer from a chronic illness. I try not to talk about it too much, try not to let it rule my life, but it is difficult.
For the last 4+ years I have been dealing with fevers 2-3 times per week, 100 or above, sometimes spiking as high as 102-103. Combined with exhaustion, joint pain, headaches, etc. I've been told by some doctors that it's Chronic Fatigue Syndrom, but other doctors do not recognize that as a true illness.
A few months ago, my new doctor - who suffers from an autoimmune disorder himself - set me up with a specialist in autoimmune diseases. The specialist ordered a whole battery of tests, etc. Plus, he researched my symptoms. And - he found something.
Recurring Fever Syndrome.
It is hereditary and incurable. But it is treatable with medication. And I can most definitely live with that.
I know it will take time, but just to be able to get through a whole day without feeling totally drained by bedtime - and to get through a whole week without a fever - would be a great improvement in my life.
It has a name.
health