Yesterday Little T's GI doctor talked seriously about removing Little T"s feeding tube aka g-tube in three months.   His g-tube is responsible for all his ER visits in the past year.  Little T hates the thing and wants to be rid of it.  With the pump, he has accidents about once every two weeks where we miscalculate the amount his stomach can hold ( Read more... )

I'm consciously trying to be less anxious about Little T's feeding. I realized that I was trying to make C feel the same level of anxiety as me. Of course if you're a parent you know this never works. And I realize that part of my anxiety is hormonal ( Read more... )

( Feeding good bad and ugly )

We switched to Resource 1.5 for Little T's feeding pump.  So far so good after three nights.  Little T will even drink the stuff from the little juice box it comes in.  Prayer to the feeding/emesis gods here.  I'd appreciate any good vibes that it keeps going well.

It's really great for C not to mix formula every night and to know the entire process ( Read more... )

I made a wiki page about Little T's GI issues.  Cos there's a lot to keep track of.  But the simple incomplete answer is that cutting Little T to 500 calories via g-tube (scarily still half of his daily calories) has been hard on him.  He's thin and lost weight and is only slowly regaining the weight he lost ( Read more... )

Little T is growing! Little T is growing!  He is now 26.3 lb and 85.5cm.  Okay he's almost 2.5 years old, but he's growing.  At our GI apt on Monday, we decided to start weaning him off the pump.  Cut it 20% to 500 calories.  We can also stick with formula ( Read more... )

Last night we went to a lovely party and my friend Tamara performed a feeding miracle with src's turkey chili ( Read more... )

I feel bad. Have cold. Stuffed head. Sore throat. Guess it started yesterday. Judging by how many errors I made in my entry yesterday which I edited. Admittedly I typed it while Little T was on my lap. Right now the house is quiet. I can think a little. Little T's feeding still looms large, but I no longer blame myself about it. It's not ( Read more... )

Sorry to be so quiet. Kite flying was excellent. The winds picked up our kite and it flew high with little effort. In fact Special K was a little disappointed, because she kept wanting it to crash. Little T has been cleared for limited contact with people and we figure that meant Mother Nature. So he scooted about on the dirt with great joy. ( Read more... )