Sep 08, 2011 15:29
So, my last MRI was a week ago. The flair or whatever it was is still there so, my doc here wants me to go to Mayo to have them do a scan with perfusion sequences so that we know for certain what we are dealing with. As I understand it (and I will be the first to admit that I probably don't understand it correctly) - that scan will monitor how much blood the cells are using - cancerous cells use more blood so if there isn't a lot of blood flow to the questionable area it probably isn't anything to be concerned about. If it IS cancer progression most likely it is the lower grade (II instead of III.) The Temodar I was taking (chemo drug) is really good at stopping the growth of grade III cells but not so much at grade II. Theoretically the grade II part of the tumor could re-grow for a long, long time without causing any real problems other than the fact that there is (GASP!) cancer growing in my head. (GASP!) Yes, folks, there is cancer in my head. There has been for years and there probably will be for the remainder of my time on this earth - perhaps many more years. Also while I am at Mayo I will visit with my neurosurgeon and my original oncologist. We will discuss my options from here on out - take more pills? Clinical studies? Coffee enemas and lying naked in the moonlight? Nothing but monitoring? Oh, the options...
We've not heard back from the scheduler at Rochester yet but I think they will try and get me in soon so we'll be headed there sometime within the next month or so I imagine.
Aside from a little anxiety due to not really knowing what the next step of the process is I am doing pretty well. I gotta say that not being on the Temodar is a very, very good thing. I am two months removed from poisoning myself and I don't miss it.
Be well everyone