Ongoing MRI stress

Jul 20, 2011 09:10

DH has been dealing with the follow up re: the message from my surgeon from Mayo. Am so glad that he is so fantastic. (both DH and Dr. P) I'm sure that if Dr P. knew how much he was stressing me out he would feel horrible. Anyway, in the message from last week it said that he would like me to not have any more treatments and to have another MRI with profusion sequences before doing anything further. DH called around and the only hospitals in the area that do profusion sequence MRIs are the UofM and Mayo - so if we are going to do it, might as well go to Mayo but.... Dr P thought that the plan was to change my treatment from the chemo (Temodar) to Avastin. In reality - the fabulous Dr Snow wanted me to take my last two rounds of chemo (Temodar) and then do another MRI and if that MRI looked like there was something progressing - THEN have me do the Avastin. Dr P thought that she wanted me to start the Avastin now and not do any more Temodar. So, a misunderstanding in the communication somewhere. DH and I also didn't hear things the same way as I heard Dr Snow say she thought I should do both my last two rounds of Temodar and then do an MRI after that. He heard take this round of Temodar and then do an MRI. So... something wasn't clear I guess. I get frustrated because anytime there is a disagreement in what is remembered to have been said I am automatically assumed to be wrong because I AM the one that had brain surgery. In reality - I often still do remember things more accurately in this sort of case because it is something I have to do. And it isn't just with the DH - it happens that way at work as well. It drives me slightly crazy because I try so hard and no one ever recognizes that and I don't want to run around saying "I told you so" when I'm right - I'm not that kind of girl. SO, back to the current plan. Dr. P seems to be fine with me taking another round of Temodar and then having an MRI but I don't think that DH has been clear that I only had two rounds left. DH was going to get in touch with Dr Snow and see if she is okay with that time schedule. I don't see why it really matters if I do one round or two before the MRI since the problem seems to have been that Dr P didn't want me to change meds. My concern is that I am going to end up having an MRI the beginning of August and then another one after my August round of Temodar.

All this back and forth and not knowing what is the plan is stressful for me. I was all set to just rock out my last two rounds of Temodar and have it done with. Sigh.
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