niece update
hey, gang... i wish i were posting good news about my niece. not so much, really.
she had a doctor's visit yesterday in Cleveland, OH with a guru up there who specializes in mitochondrial disease. he had some good news on the general medical front, in that there have been some major research breakthroughs in the last 6 months alone that have really helped in our ability to identify specific genes in the mitochondrial DNA. also, he's quite familiar with my sister's autoimmune disease, CIDP, and he says he has seen strong correlation between it and mitochondrial DNA problems.
the grim news is that my niece started having seizures on the plane on the way home from Cleveland, and she's in the hospital again, heavily sedated. they're trying to stop the seizures.
please keep the family in your thoughts/prayers/meditations/good vibe sendings or whatever you've got to offer in the way of positive, healing energy. we're worried, we're sad, we can use all the uplift we can get. thank you.
she had a doctor's visit yesterday in Cleveland, OH with a guru up there who specializes in mitochondrial disease. he had some good news on the general medical front, in that there have been some major research breakthroughs in the last 6 months alone that have really helped in our ability to identify specific genes in the mitochondrial DNA. also, he's quite familiar with my sister's autoimmune disease, CIDP, and he says he has seen strong correlation between it and mitochondrial DNA problems.
the grim news is that my niece started having seizures on the plane on the way home from Cleveland, and she's in the hospital again, heavily sedated. they're trying to stop the seizures.
please keep the family in your thoughts/prayers/meditations/good vibe sendings or whatever you've got to offer in the way of positive, healing energy. we're worried, we're sad, we can use all the uplift we can get. thank you.