The American Chronic Pain Association site says the group has been around since 1980, but I hadn’t run across them until yesterday. I spent some time on their site and they have some really good resources as well as a long list of support groups. There aren’t any groups near me, but I think I’ll try out their online group. Let me know if you go to ( Read more... )

I’ve never encountered this website before, but it was linked from a blog carnival, and the article is pretty good: Because Sitting up is for Suckers: 70+ Tools, Tips and Hacks to Work from Bed

I still miss my laptop!

And I have a pretty nice setup, but can’t help drooling at this: the Ergopod 500. I’m not about to look at the prices, though!

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This isn’t where I usually get geeky, but I think this utility might be useful to many readers.

I get notices from the Giveaway of the Day and Game Giveaway Of the Day sites each day as to what they have available that day. They make arrangements with various software publishers to distribute commercial software absolutely free in return for ( Read more... )

Paula Kamen, author of All In My Head, talks about the value of education in coping with chronic illness in an excellent editorial in the New York Times, Leaving the Rabbit Hole. This passage, in particular, spoke to me:

The worst thing, to me, about having a non-stop multi-year headache isn’t necessarily the pain. Or the way it tends to disrupt ( Read more... )

Curehunter is an interesting addition to our online toolbox. It’s a visual medical dictionary. Here’s part of what it gives me when I look up fibromyalgia:


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Episode 4

The first episode in the new, shorter format, recorded on my very own microphone. Thank you for your patience in waiting for it!

Most of today’s show is about audio entertainment and information, which is great when the fatigue is so bad that listening is one of the few things we can do.

Links:

• Audio Books
  • Audio-Book-Rentals is a blog ( Read more... )

I had to share this excellent post on Surviving Travel and Conference from Indie Guzman-Cooper, RN writing at WebMD. She provides a great checklist of things she did to prepare for the trip, as well as other bits of wisdom, such as:

When I arrived to park my car, arrive at the airport, and check in, I sought out assistance. For me, this was a new ( Read more... )

Great cartoon from Ragged Edge. I want to get that notepad printed up!


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I’ll record episode 3 as soon as my sound tech (aka Sam, my partner) is available.

Right now, though, I’m in the mood to plump up my blogroll. Suggest other blogs and podcasts about fibromyalgia, chronic fatigue, or chronic illness, please! What are your favorites? Do you have one yourself? Tell me about it!

Mirrored from Cyn Armistead.