(no subject)
This is what a flare looks like:
I wake up around noon, eat something for breakfast, maybe say hello to mom and then I go back to bed.
In a couple hours I muster the strength to get up and probably take a shower.
Around four oclock or so is when I feel most awake, so I try to do something like bake, and then I'm exhausted again.
I eat dinner, and after eating I feel sick so I'm in the bathroom until I go down to clean the dishes.
Then I'm exhausted again. I pop in a movie and either fall asleep or go up to my room to read before falling asleep. I can't wear my pajamas to bed though, because the material irritates the rashes.
Depending on the flare, I might have to ice my eye all day and that means I stay in bed all day.
There are still only two people who know. One of them doesn't even talk to me anymore, and the other one must have forgot I told her because she's always asking me to do all this stuff with her and when I tell her I'm tired she gets pouty.
I don't expect my friends to understand. I certainly don't expect pity because this is manageable. Just a little working with me...just don't give up on me as a friend. I'm trying my best, but some days are better than others. Some weeks are better. Some days its like nothing at all is wrong.
I keep waiting for a girls night so I can explain, but it keeps getting put off. I am getting restless, like I just need to tell them before they write me off. Not that they would, but I mean I'm not being that great of a friend right now.
I wake up around noon, eat something for breakfast, maybe say hello to mom and then I go back to bed.
In a couple hours I muster the strength to get up and probably take a shower.
Around four oclock or so is when I feel most awake, so I try to do something like bake, and then I'm exhausted again.
I eat dinner, and after eating I feel sick so I'm in the bathroom until I go down to clean the dishes.
Then I'm exhausted again. I pop in a movie and either fall asleep or go up to my room to read before falling asleep. I can't wear my pajamas to bed though, because the material irritates the rashes.
Depending on the flare, I might have to ice my eye all day and that means I stay in bed all day.
There are still only two people who know. One of them doesn't even talk to me anymore, and the other one must have forgot I told her because she's always asking me to do all this stuff with her and when I tell her I'm tired she gets pouty.
I don't expect my friends to understand. I certainly don't expect pity because this is manageable. Just a little working with me...just don't give up on me as a friend. I'm trying my best, but some days are better than others. Some weeks are better. Some days its like nothing at all is wrong.
I keep waiting for a girls night so I can explain, but it keeps getting put off. I am getting restless, like I just need to tell them before they write me off. Not that they would, but I mean I'm not being that great of a friend right now.