Who is it really about?
I am beyond fed up. To find out why, read on.....
Amber was lifeflighted to Geisinger again on Tuesday. She is currently in her 19th medically-induced coma. Since being introduced to Geisinger's online CarePages, her mother writes daily updates during hospital visits. At first, this seemed like a good thing. When she tried to keep Scott and I out of the loop, we could easily catch up on the latest news by checking out the CarePage. The downside? Comments are allowed. She receives comments on almost every post with well-wishes and proclamations of thoughts and prayers.
I suppose you're thinking that this should be a good thing. If this woman were in any way, shape, or form SANE, it would be. Unfortunately, she's not. She thrives on the attention. Now, in addition to the CarePage, she has a facebook page and a special facebook group page called "All About Amber- Send Her a Card to Make Her Smile". Now thousands of people are brought into her life. Don't be deceived, however. This page is NOT about Amber in the slightest. It's about her mother. 99% of wall posts are not even remotely directed toward Amber. They are for April. We're praying for YOU. I'm sorry that YOU are going through this. Granted, some of them do mention Amber, but often it's "We're praying for YOU and Amber."
Today, she had a couple of responses on her own facebook page, which spawned my need to write about it here. One person commented that it must be so scary, blah blah blah. It's not like this is the first time she's been through this. Don't think I'm minimizing what Amber goes through. As much as she can irritate me, no child deserves to go what she goes through. But this is old hat for us. Scott even made the following comment after getting the phone call that Amber was in flight to Danville. "You know you lead a strange life when you just find out that your daughter is being lifeflighted, and you're not worried." Obviously, there is some degree of worry. Things can go wrong, and there's always the looming possibility that when she wakes from the coma that she will go right back into a seizure that they cannot stop. But the doctors and nurses at Geisinger are wonderful. She is in excellent hands. Everytime she goes to the hospital, I always find myself at peace. I just know that she will be ok. The coma gives her brain a rest, so she is recharged when she wakes.
Amber is in the coma. Amber had a bad seizure. Amber was supposed to attend seizure camp this weekend and is now missing out. AMBER will have to wake up and go through the recovery process. Amber is going through this. AMBER. NOT her mother. I realize that it is hard on her. It is hard on Scott, too. But no one ever hears about that. No one is having benefit dances to raise money for Scott. No one is having breakfasts and dinners to take donations for Scott. No one is having golf tournaments to benefit the Epilepsy foundation and the father of Amber Dougherty. No, all of those things were done "for Amber" or "for the family of Amber Dougherty". Meaning, Amber's MOTHER. Meanwhile, how much of that money actually went to AMBER? What about all of the money that Scott and I spend to have her here, to go back and forth from the hospital since we both *gasp* work for a living??? How is it that a couple of weeks after a benefit dance for "Amber" do her mother and step-father suddenly have the money and time to take a trip to Los Vegas? Hmmmmmm??? Scott and I aren't asking for anything, but it pisses me off to no end that he is left out of the equation. People assume that she has no father. People assume that her mother is going through this all alone, and that is completely untrue!
I'm just so sick and tired of people misdirecting their comments. I'm sick and tired of people misunderstanding Amber's condition. I'm sick and tired of people thinking that things are worse than they are and therefore providing Amber's mother with even more attention.
Ugh. Some people just make me want to vomit.
Amber was lifeflighted to Geisinger again on Tuesday. She is currently in her 19th medically-induced coma. Since being introduced to Geisinger's online CarePages, her mother writes daily updates during hospital visits. At first, this seemed like a good thing. When she tried to keep Scott and I out of the loop, we could easily catch up on the latest news by checking out the CarePage. The downside? Comments are allowed. She receives comments on almost every post with well-wishes and proclamations of thoughts and prayers.
I suppose you're thinking that this should be a good thing. If this woman were in any way, shape, or form SANE, it would be. Unfortunately, she's not. She thrives on the attention. Now, in addition to the CarePage, she has a facebook page and a special facebook group page called "All About Amber- Send Her a Card to Make Her Smile". Now thousands of people are brought into her life. Don't be deceived, however. This page is NOT about Amber in the slightest. It's about her mother. 99% of wall posts are not even remotely directed toward Amber. They are for April. We're praying for YOU. I'm sorry that YOU are going through this. Granted, some of them do mention Amber, but often it's "We're praying for YOU and Amber."
Today, she had a couple of responses on her own facebook page, which spawned my need to write about it here. One person commented that it must be so scary, blah blah blah. It's not like this is the first time she's been through this. Don't think I'm minimizing what Amber goes through. As much as she can irritate me, no child deserves to go what she goes through. But this is old hat for us. Scott even made the following comment after getting the phone call that Amber was in flight to Danville. "You know you lead a strange life when you just find out that your daughter is being lifeflighted, and you're not worried." Obviously, there is some degree of worry. Things can go wrong, and there's always the looming possibility that when she wakes from the coma that she will go right back into a seizure that they cannot stop. But the doctors and nurses at Geisinger are wonderful. She is in excellent hands. Everytime she goes to the hospital, I always find myself at peace. I just know that she will be ok. The coma gives her brain a rest, so she is recharged when she wakes.
Amber is in the coma. Amber had a bad seizure. Amber was supposed to attend seizure camp this weekend and is now missing out. AMBER will have to wake up and go through the recovery process. Amber is going through this. AMBER. NOT her mother. I realize that it is hard on her. It is hard on Scott, too. But no one ever hears about that. No one is having benefit dances to raise money for Scott. No one is having breakfasts and dinners to take donations for Scott. No one is having golf tournaments to benefit the Epilepsy foundation and the father of Amber Dougherty. No, all of those things were done "for Amber" or "for the family of Amber Dougherty". Meaning, Amber's MOTHER. Meanwhile, how much of that money actually went to AMBER? What about all of the money that Scott and I spend to have her here, to go back and forth from the hospital since we both *gasp* work for a living??? How is it that a couple of weeks after a benefit dance for "Amber" do her mother and step-father suddenly have the money and time to take a trip to Los Vegas? Hmmmmmm??? Scott and I aren't asking for anything, but it pisses me off to no end that he is left out of the equation. People assume that she has no father. People assume that her mother is going through this all alone, and that is completely untrue!
I'm just so sick and tired of people misdirecting their comments. I'm sick and tired of people misunderstanding Amber's condition. I'm sick and tired of people thinking that things are worse than they are and therefore providing Amber's mother with even more attention.
Ugh. Some people just make me want to vomit.