Apologies for two depressing posts in a row, but this is important

Jul 11, 2008 15:36

I'm not usually the type to sign online petitions - they rarely make any difference - but I must make an exception for this.

http://www.autism-hub.co.uk/autism-speaks-dont-speak-for-me/index.php

On May 9th 2006, Autism Speaks launched a film ( Read more... )

lj: public post, type: rants, issues: autism

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Re: s awful sentence structure sasha_lilyrat July 12 2008, 15:39:24 UTC
Yes, I've met disability pride people. The reason I described nerve damage as 'clearly a disability' is because you said it affects your happiness and quality of life. You want to go hiking (which is fair enough). So it's a disability for you. It's not a disability for Erica because she's happy with it. That's what I was getting at. A 'disability' is only a disability if the person in question feels it is, which obviously I don't. (For the record I'm inclined to agree with your friends; the world should change to accommodate people in wheelchairs and so forth, no the other way around.)

About OCD, you're extremely dark, but about autism you're all light?
Yes, because my OCD is an illness which I have developed and which is damaging to my quality of life. Aspergers is something that is part of who I am and always has been, and I wouldn't want to live without it because I wouldn't be me. It's just difficult navigating that sometimes.

However, I wouldn't say I'm 'all light' about it either. Have you read some of my less political posts about Aspergers? Here are a few I just fished out of the tags...
http://sasha-lilyrat.livejournal.com/142133.html
http://sasha-lilyrat.livejournal.com/116765.html
http://sasha-lilyrat.livejournal.com/106433.html
http://sasha-lilyrat.livejournal.com/106208.html
http://sasha-lilyrat.livejournal.com/17695.html

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Re: s awful sentence structure malicious_pengy July 12 2008, 16:06:36 UTC
How the hell did that get posted? I wasn't done with it...

The funny thing is that Erica isn't disabled. She clearly states that, so it isn't an invisible disability, either. But the others were just as vocal, just not as likely to bite people.

Do you want me to leave? I do not do this often. You have not seen me do this before. Whether I stay or go, you are not likely to see it again.

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Re: s awful sentence structure malicious_pengy July 12 2008, 16:10:09 UTC
I think I read those at the time, but specifics in lj never seems to stick in my mind. Much more of a general trend person in this. Which is probably good, because I would never get anything done.

You can write those entries, and still consider it not a problem?

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sasha_lilyrat July 12 2008, 16:15:42 UTC
You can write those entries, and still consider it not a problem?
Yes. I think this is where we are getting stuck - the terminology of it. I don't see Aspergers as a problem. I do think it causes problems. There is a difference. But I'm not quite sure how else to explain it.

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malicious_pengy July 12 2008, 16:22:49 UTC
I see. Not the specifics of course, but there are problems and then there are problems. I guess? I do have something more specific in my mind than that, but it's not moving to my fingers, so I couldn't really tell you what.

I can no longer sit at the computer and argue/debate/bitch/slap people around. Whatever it is I am doing. RenFaire...I'm going dressed as the 60s. For some reason.

But could I know if you intend to unfriend me before I go off to the park? It would be better for me to stop stressing. I hate arguing/debating/bitching/slapping people around, even with people on the internet, and would feel much better with some sort of response.

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sasha_lilyrat July 12 2008, 16:32:57 UTC
Right now I'm not sure. I usually agree with you and you leave interesting comments, and this has at least made me think about how to explain my point of view. But I don't really appreciate being told how I should or should not feel about Autistic issues, when I've lived with it my entire life. I'm sorry that my view is different than yours. Of course, it would be hypocritical of me to expect you to agree with me since I obviously don't subscribe to your 'middle' view of matters.

So, um, yeah I don't know. Yes, I am so helpful like that.

Have fun at the RenFaire, anyway! :)

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Re: s awful sentence structure malicious_pengy July 12 2008, 16:11:55 UTC
Okay, I think that is a touchpad problem. Need to get my mouse back. I was even in the middle of deleting the subject line and writing a different one in!

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