Celine Dion Has Lost Her Voice as She Suffers Rare Illness

[ivn]

The rare disease threatened her career and silenced her one-in-a-million voice. Dion, 56, first shared her diagnosis in December 2022.

Celine Dion gets vulnerable and shows how her stiff person syndrome has impacted her ability to sing.

pic.twitter.com/DiFLdLp7Zd
- Mr. Pop (@MrPopOfficial) June 11, 2024
Dion began filming the “I Am: Céline Dion”

Comments

[automaticpeople]

In didn’t know that diazepam is Valium. I know people who take it and I know Valium is meant to be rather addictive right?

[umilicious]

I doubt it was meant for that, but yeah, it’s heavy stuff. One of the first things I tell a new psych is that I want to avoid medications ending in -pam because I’ve seen how they affect you. I’m sure I would have gotten addicted if it was my anxiety treatment, especially with how easily doctors would prescribe it back then.

*edited to add: that’s not to say that drugs like diazepam and lorazepam aren’t effective. They really are. But they shouldn’t be the first option unless someone’s safety is at stake.

[pciam]

Yeah - I have chronic pain associated with my TMJ (jaw joint

[shoopbabee]

Botox works super well for my TMJ too, have you tried Daxify? It's like a souped-up Botox and it lasted way longer for me than regular Botox.

[pciam]

I haven't tried Daxify, but we have done Dysport i/o Botox. Dysport is supposed to have a greater spread across the muscles than Botox.. I'm assuming Daxify is similar in that regard?

I go back in July for my next dose -- I might ask about Daxify.

[shoopbabee]

I think Daxxify (sorry spelled wrong the first time) is supposed to last longer. I have to say about 15 mins after the injection my jaw clicking was gone and I started feeling relief within a day, so for me at least it also takes effect more quickly than the Botox brands I normally get. I pulled this from a plastic surgery page "Daxxify is different from Botox in that it works faster and for longer-most people will notice a major decrease in movement in two days with Daxxify, versus the usual 5-7 days with Botox, and Daxxify wears off after six months (on average), in comparison to Botox’s three to four months."

[umilicious]

Thank you for reminding me about Botox for TMJ. I have untreated TMJ and need to look into this when I can afford it 💛

[pciam]

It really does cost too much; I wish insurance companies here in the US would start to cover it for TMJ like some do now for migraines.

But I literally tried everything else -- all kinds of medications (that mostly just made be very tired, while still in pain) + all kinds of different splints (hard plastic, soft plastic, full coverage, partial, etc.) which ALWAYS made my pain worse because they increased my grinding/clenching, massage/physical therapy, even chiropractor (I was desperate to try anything). The only thing that's ever really offered substantial relief for me to stop the spasming is Botox. So for me, it costs a lot each year, but it's been worth it than continuing to live in that level of pain.

I still use a non-addictive muscle relaxer at night before bed -- just to help me get to sleep and to cut back a bit on any night time clenching/grinding. Best of luck to you! -hugs-

[yurasama_love]

Yes, benzodiazepines are very addictive

[braindiva]

Benzodiazepines have a potential for addiction, but they can sometimes be useful for acute/short term use (i.e., a few days or weeks). But generally, relying on them as a long-term solution is a bad idea since there are many other safer drugs that can treat the same issues. Benzos can have negative cognitive impact, and your body tends to habituate and once you discontinue use, sometimes you end up with worse symptoms. For example, if you use benzos for sleep issues, not only is it not very effective after a few weeks but you might also get rebound insomnia when you stop. Plus, they have additive effects with alcohol so that's how it can put you at risk of overdose by depressing your nervous system far too much.

[shoopbabee]

Benzos can be addictive if used improperly, just like all medications. But they're incredible first line therapies for panic attacks because you only need about 1mg to stop a panic attack and it works within 5-10 minutes. It's important for people with severe anxiety that is non-responsive to other treatments to still have access to benzos, just like it is for people in severe pain to still have access to opiates. It just needs to be managed and tracked using automated prescription tracking.

[pciam]

Yeah - I have a friend with panic disorder. He gets a panic attack maybe once or twice a month. So benzos are great for him. And 1 30-day supply can literally last him months so his doctor is not very concerned about the addictive properties since he's only using like 1 or 2 per month.

I really do feel for people in chronic severe pain though when non-opiates do not work. In some cases, I think there is over-correction because legitimate pain seekers often cannot get access to opiates even after trying everything else first. Some doctors are afraid to prescribe them even for legitimate purposes.

I know that treating pain can be very subjective, and in many cases you're relying on the word of the patient re: how severe their pain is. That's why I think it's v. important to find a sympathetic doctor who can work with you over a long period of time to establish that level of trust b/w doctor and patient

[ty]

Benzos, highly addictive and horrible withdrawal