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Celine Dion Has Lost Her Voice as She Suffers Rare Illness
The rare disease threatened her career and silenced her one-in-a-million voice. Dion, 56, first shared her diagnosis in December 2022.
Celine Dion gets vulnerable and shows how her stiff person syndrome has impacted her ability to sing.
pic.twitter.com/DiFLdLp7Zd
- Mr. Pop (@MrPopOfficial) June 11, 2024
Dion began filming the “I Am: Céline Dion” documentary before getting diagnosed with stiff person syndrome and continued as her illness progressed.
Céline Dion suffered a spasm live on camera while shooting her documentary pic.twitter.com/Ph8XWz3QSp
- celine vocals (@CelineOracle) June 12, 2024
In an exclusive interview that aired June 11, Dion sat down with TODAY’s Hoda Kotb for an intimate, emotional conversation about the anguish she’s been through and her hopes for the future.
Hoda Kotb full Interview with the Queen Celine Dion pic.twitter.com/6amgieply8
- Celine Dion Icon (@celinedionlcon) June 12, 2024
To manage the symptoms that she was experiencing prior to her diagnosis, Céline Dion began taking diazepam, a drug commonly known as Valium, to help relax her muscles.
“I did not know, honestly, that it could kill me,” she says. “I would take, for example before a performance, 20 milligrams of Valium, and then just walking from my dressing room to backstage, it was gone already.”
She says her body got used to the medication “that fast,” and she would feel her symptoms again after “20 minutes.” She began to raise her dosage. “You get used to it, it doesn’t work,” she says, and then she needed “more.”
At one point, she was taking up to 90 milligrams a day, an amount that can “kill you,” she says.
Today, Dion is undergoing immunotherapy and non-pharmacological treatments, like physical therapy, as well as taking drugs that help with the muscle spasms.
Even though her diagnosis and symptoms have forced her to cancel her tour and Las Vegas residency, Dion says she plans to perform again.
"I’m going to go back onstage, even if I have to crawl. Even if I have to talk with my hands. I will. I will," she tells Hoda. "I am Céline Dion, because today my voice will be heard for the first time, not just because I have to, or because I need to. It’s because I want to. And I miss it."
She has no doubt in her mind it will "absolutely" happen.
Source 1 2 3
This is gut-wrenching. I hope she recovers soon! 💔
Celine Dion gets vulnerable and shows how her stiff person syndrome has impacted her ability to sing.
pic.twitter.com/DiFLdLp7Zd
- Mr. Pop (@MrPopOfficial) June 11, 2024
Dion began filming the “I Am: Céline Dion” documentary before getting diagnosed with stiff person syndrome and continued as her illness progressed.
Céline Dion suffered a spasm live on camera while shooting her documentary pic.twitter.com/Ph8XWz3QSp
- celine vocals (@CelineOracle) June 12, 2024
In an exclusive interview that aired June 11, Dion sat down with TODAY’s Hoda Kotb for an intimate, emotional conversation about the anguish she’s been through and her hopes for the future.
Hoda Kotb full Interview with the Queen Celine Dion pic.twitter.com/6amgieply8
- Celine Dion Icon (@celinedionlcon) June 12, 2024
To manage the symptoms that she was experiencing prior to her diagnosis, Céline Dion began taking diazepam, a drug commonly known as Valium, to help relax her muscles.
“I did not know, honestly, that it could kill me,” she says. “I would take, for example before a performance, 20 milligrams of Valium, and then just walking from my dressing room to backstage, it was gone already.”
She says her body got used to the medication “that fast,” and she would feel her symptoms again after “20 minutes.” She began to raise her dosage. “You get used to it, it doesn’t work,” she says, and then she needed “more.”
At one point, she was taking up to 90 milligrams a day, an amount that can “kill you,” she says.
Today, Dion is undergoing immunotherapy and non-pharmacological treatments, like physical therapy, as well as taking drugs that help with the muscle spasms.
Even though her diagnosis and symptoms have forced her to cancel her tour and Las Vegas residency, Dion says she plans to perform again.
"I’m going to go back onstage, even if I have to crawl. Even if I have to talk with my hands. I will. I will," she tells Hoda. "I am Céline Dion, because today my voice will be heard for the first time, not just because I have to, or because I need to. It’s because I want to. And I miss it."
She has no doubt in her mind it will "absolutely" happen.
Source 1 2 3
This is gut-wrenching. I hope she recovers soon! 💔