Oct. 10
Kenny's experience at home is rocky to say the least. It will take several weeks to learn what "normal" or "stable" is, and how to cope with yo-yo swings of temperature, bile output, seizures, feeding toleration and so forth. In the meantime folks are bringing in great food, and we feel surrounded by care. Carolyn leaves tomorrow; she needs to go back home and find her own normal. October is going to be an interesting month. I SWEAR my son will not experience awful pain; that is my principal vow to him.