A plea for help, flist
I am the sort of person who usually hates people who do this. It's slightly different when the issue is something that affects you directly. (For information on what M.E. actually is, please click the 'AYME' link in my sidebar -->)
However, if anyone in the UK could spare a minute or two to sign this petition, I would very much appreciate it. http://petitions.number10.gov.uk/AttendIiME2009/ Also, a group of people are on Twitter asking celebrities to retweet the UK petition for M.E./Chronic fatigue syndrome treatment http://petitions.number10.gov.uk/AttendIiME2009/ (to get a member of the government at the Invest in M.E. conference May 2009.) Jonathan Ross just retweeted and signed the petition, so if you have any other celebs on your Twitter, please ask them.
Basically, there is a conference in May this year that we are trying to get government representation at, and the more people who sign the petition, the more likely it is that someone will notice the scale of this illness.
We the undersigned petition the Prime to send the Minister Of Health, Medical Research Council delegates and the Chief Medical Officer to attend the INVEST in ME Conference (IiME) 29th May 2009 London.
The previous IiME conferences in 2008 attended by presenters and delegates from 13 countries, from Europe, USA, Australia, New Zealand and South Korea demonstrated that “PROVEN BIOLOGICALMARKERS & TREATMENTS FOR SOME SUB TYPES OF ME/CFS ARE ALREADY THERE!”
Now the challenge is for the Chief Medical officer, the Medical Research Council and the Government to take up the challenge laid down by the conference in 2008 and commit to a national strategy of biomedical research into ME, without any conditionsor provisions for enforcing the psychosocial model to be in corporated.
IiME demonstrated at their last conference that THEY HAVE DRUGS ALREADY THAT CAN TREAT SOME OF THE SUBGROUPS OF M.E./CFS!!
Pressure is needed to get government representation at the next IiME conference because as of yet they have declined all written invitations to attend the next conference.
It is indeed a national scandal the way that these government officials treat people with ME and their families so disgracefully - by claiming officially that there is little known about M.E. yet failing to attend four conferences now which clearly show the organic origin of M.E. and the treatments which are available, and are being developed internationally to treat this disease!
There are treatments out there for this illness. We just need the government to recognise it for what it is, and invest in some research so that the thousands of people who suffer - 25,000 under the age of 25 in the UK alone - can finally get some treatment.
From the Facebook campaign page (join here), the aim of the petition is:
-To get as many signatures as possible from those who care for, suffer and are affected by this illness; not only illustrate the sheer scale of this illness to the government, but to demand the proper attention and recognition it deserves.
-By demanding representation at this conference, we hope that highlighting the current biological research in M.E. / CFS to the Government; will help further research, treatment and commitment to helping the sufferers of this illness.
Sorry for rambling on, but M.E. Awareness Week is in May, and if we could get some government backing, we might be able to stop people having to suffer so much.
Thank you.
http://petitions.number10.gov.uk/AttendIiME2009/
However, if anyone in the UK could spare a minute or two to sign this petition, I would very much appreciate it. http://petitions.number10.gov.uk/AttendIiME2009/ Also, a group of people are on Twitter asking celebrities to retweet the UK petition for M.E./Chronic fatigue syndrome treatment http://petitions.number10.gov.uk/AttendIiME2009/ (to get a member of the government at the Invest in M.E. conference May 2009.) Jonathan Ross just retweeted and signed the petition, so if you have any other celebs on your Twitter, please ask them.
Basically, there is a conference in May this year that we are trying to get government representation at, and the more people who sign the petition, the more likely it is that someone will notice the scale of this illness.
We the undersigned petition the Prime to send the Minister Of Health, Medical Research Council delegates and the Chief Medical Officer to attend the INVEST in ME Conference (IiME) 29th May 2009 London.
The previous IiME conferences in 2008 attended by presenters and delegates from 13 countries, from Europe, USA, Australia, New Zealand and South Korea demonstrated that “PROVEN BIOLOGICALMARKERS & TREATMENTS FOR SOME SUB TYPES OF ME/CFS ARE ALREADY THERE!”
Now the challenge is for the Chief Medical officer, the Medical Research Council and the Government to take up the challenge laid down by the conference in 2008 and commit to a national strategy of biomedical research into ME, without any conditionsor provisions for enforcing the psychosocial model to be in corporated.
IiME demonstrated at their last conference that THEY HAVE DRUGS ALREADY THAT CAN TREAT SOME OF THE SUBGROUPS OF M.E./CFS!!
Pressure is needed to get government representation at the next IiME conference because as of yet they have declined all written invitations to attend the next conference.
It is indeed a national scandal the way that these government officials treat people with ME and their families so disgracefully - by claiming officially that there is little known about M.E. yet failing to attend four conferences now which clearly show the organic origin of M.E. and the treatments which are available, and are being developed internationally to treat this disease!
There are treatments out there for this illness. We just need the government to recognise it for what it is, and invest in some research so that the thousands of people who suffer - 25,000 under the age of 25 in the UK alone - can finally get some treatment.
From the Facebook campaign page (join here), the aim of the petition is:
-To get as many signatures as possible from those who care for, suffer and are affected by this illness; not only illustrate the sheer scale of this illness to the government, but to demand the proper attention and recognition it deserves.
-By demanding representation at this conference, we hope that highlighting the current biological research in M.E. / CFS to the Government; will help further research, treatment and commitment to helping the sufferers of this illness.
Sorry for rambling on, but M.E. Awareness Week is in May, and if we could get some government backing, we might be able to stop people having to suffer so much.
Thank you.
http://petitions.number10.gov.uk/AttendIiME2009/