(no subject)
I feel so bad for mikes cousin. Him and his wife have a 4 yr okd son and have been trying for s second a long time. After 2 miscarriages they finally had s baby girl. But when she was born ion Monday there was something wrong with her skin. She was diagnosed with eb. She is what they call a butterfly child. I'm certainly no expert but basically no one can touch her or they will irritate her skin and cause blisters. They have to change her bandages twice a day and it's so painful they have to give her morphine to do it. There is no cure. She wil have this for the rest of her life.,,, not sure how long that will be. I just can't imagine not ever being able to hug or kiss or touch my baby. I complain when my kids wake in the night or tantrum or whatever but it's such a small problem now.
Not only is this sad, but now they're entire lives have been turned upside down. She was transferred to a hospital in the city for special care so they don't know where they are going to live to be close by. His cousin was trying to change careers but now probably has to go back to his old job cause it makes more money and has better benefits. His wife wil probably never be able to work cause their daughter needs full time care. And then of course the brother will have to adjust to having such a needy and sick sister. Their entire world has been turned upside down in the matter of seconds... Seconds that are supposed to be the happiest when you welcome a baby. My heart breaks for them. Please keep them in your prayers.
Not only is this sad, but now they're entire lives have been turned upside down. She was transferred to a hospital in the city for special care so they don't know where they are going to live to be close by. His cousin was trying to change careers but now probably has to go back to his old job cause it makes more money and has better benefits. His wife wil probably never be able to work cause their daughter needs full time care. And then of course the brother will have to adjust to having such a needy and sick sister. Their entire world has been turned upside down in the matter of seconds... Seconds that are supposed to be the happiest when you welcome a baby. My heart breaks for them. Please keep them in your prayers.