fibro day

[justmedeb]

One of those lovely fibro days. Slept 1 1/2 hours again due to arms and back pain. Stupid arms. Throbbing and numb. I still don't understand how you can be numb and yet be in pain. Makes no sense. I'm not big on posting in my journal as i tend to screw things up not really knowing computers too well yet. I usually just comment on my friends pages.

Comments

[anonymous]

[justmedeb]

You're so sweet. Thanks for thinking of me. I just get so darn tired of not sleeping and I want my arm splints and my SSDI I worked so many years for. Guess too much to ask for. Sorry I'm grouchy today and feeling sorry for myself. And i'm so computer dumb. Tried to post to fibro and couldn't access it so maybe because I kept screwing up my posts they won't let me post there anymore? I don't know I get computer dumb, still trying to learn and have to try and write things dowan and now I just feel like crying. More tired than I thought I guess. Just get tired of the constant struggles and want to be a person again.
I'm sorry I hate beaing such a downer and dumping this on you. You've been thru so much and live with so much pain of your own you don't need me crying on your shoulder too.
Are you doing better Hon? I hope so you've had quite an ordeal with the job and every thing else. Take care and thank you for the offer Lol. Be well and Hugs, Deb

[seducarain]

My ankles are still huge. I lost the prescriptions from the hospital the other day (fibro fog I guess) and when I called my regular doctor, they only called in the water pills and not the potasium. I know not to take the water pills without the other because I was very low on potasium to begin with.

Don't worry about crying on my shoulder.....its big enough :)

[justmedeb]

Greatly appreciated. Especially today or yesterday I guess now since it's actually now Weds. Slept at least almost 3 hours last night (2 1/2).
Hope you locate your scripts in that heat potasium and water pills would really help with the swelling. Hope you're better today and thanks for the shoulder you're so sweet. Hugs, Deb

[tamie_m]

yes, totally agree - I hate the fact that you can look perfectly normal yet feel like utter crap! its almost an oxymoron! oh well!

bitch away dear lady - we all have our days! :p

[justmedeb]

Hi Tamie, Thanks. It was a pretty bad couple of days actually. Got to do something about the grocery shopping and I have days I just get tired of being tired. Sorry about the rant. I don't want to pop your bubble things are going so well for you right now you don't need to hear my whining too. But thanks for understanding. Hugs, Deb

[justmedeb]

Yep, use them both but sometimes the pain overrides. I fall asleep ok just pain wakes me like a jolt. I did get a little nap and felt better later. But really tired again and going to try it again. This is also a PTSD time for me and I have some nightmares that wake me too. I just don't sleep much and haven't in a few years. But I still try to go one day at a time. And hope the next is better. Not so young and up for the fight these days. So I just roll as the day goes. Do what I can one day and maybe not much the next. No young kids left so I can take it easy now when I need too. Hugs, Deb

[goddesslibitina]

I have an article on Fibro that my MIL clipped out and gave to me. It talks a lot about how people with Fibro often appear to be fine but are in fact, not. This isn't rocket science or anything of course but have you ever had any problems with doctors? Have they even given you trouble because you *look* fine? I have had doctors tell me that the pain is all in my head. Those are the worst. I am glad I have a doctor now that understands my frustrations and keeps me out of pain. It's so hard nowadays to find a GOOD doctor that cares. =(

[justmedeb]

Its true a lot of Dr's don't look at fibro patients the same. For the most part I've been lucky as I was diagnosed over 20 years ago and have had pretty musch except for changes in insurance, the same Dr's for a long time. Right now though I just lost my Dr after 3 years as they are residents and she was replaced well I guess a year ago and although this Dr is good she has a little fibro chip on her shoulder. But also has my records and knows I have other conditions as well and she's been pretty decent for the most part just a little too busy sometimes for my needs. It is so hard to find a good Dr though and I have an attachment issue to my Dr's. Especially when you find a good one who understand fibro and our needs. Hugs, Deb