fibro day
One of those lovely fibro days. Slept 1 1/2 hours again due to arms and back pain. Stupid arms. Throbbing and numb. I still don't understand how you can be numb and yet be in pain. Makes no sense. I'm not big on posting in my journal as i tend to screw things up not really knowing computers too well yet. I usually just comment on my friends pages. But today I'm whining a little again and just don't feel like being alone. I wrote out some info on lj-cuts and if this gets too long I might try to do them but afraid I'll screw up the post as I usually do.
I just did it. Hit something and lost part of my post. I give.
Anyway I was saying that I get tired of people who haven't a clue what living with fibro is like. Most people don't even pay attention to you until they see my cane and then they have a change in attitude. But not all of us use aid devices and I didn't for years and years. Thats what's so hard to get peple to see that you may not look it, act it or show it to them but we are sick. Is there a Fibro badge or pin like heart disease or breast cancer. No. We're not dying just feel like we are and sometimes wish it just for the relief. I get angry that with all the money in this country and the bid pharmacuticul co's why isn't there something to cure everything and fibro too? Hidden diseases suck period. Fibro runs hot and cold. It varies from person to person. But it's there and it can be disabling to many and to many it's managable. I went 20 years of keeping it somewhat managable. But it's not now and I'm in "But you don't look sick" catagory except for walking with a cane and the people who actually have known me and see the changes. It's even a struggle to find a good Dr, SS, family and friends support, remedies. I read info from clinical trials in other countries and encouraging news but what about the US? Is my quality of life so unimportant Mr Bush?
Sorry guys just a grumbling old lady having a Fibro flare and really would rather not be. Want to be young and full of vitality and sleep for a change, free of pain and yadayadayada. Bad, sad day. Fibro day.
I just did it. Hit something and lost part of my post. I give.
Anyway I was saying that I get tired of people who haven't a clue what living with fibro is like. Most people don't even pay attention to you until they see my cane and then they have a change in attitude. But not all of us use aid devices and I didn't for years and years. Thats what's so hard to get peple to see that you may not look it, act it or show it to them but we are sick. Is there a Fibro badge or pin like heart disease or breast cancer. No. We're not dying just feel like we are and sometimes wish it just for the relief. I get angry that with all the money in this country and the bid pharmacuticul co's why isn't there something to cure everything and fibro too? Hidden diseases suck period. Fibro runs hot and cold. It varies from person to person. But it's there and it can be disabling to many and to many it's managable. I went 20 years of keeping it somewhat managable. But it's not now and I'm in "But you don't look sick" catagory except for walking with a cane and the people who actually have known me and see the changes. It's even a struggle to find a good Dr, SS, family and friends support, remedies. I read info from clinical trials in other countries and encouraging news but what about the US? Is my quality of life so unimportant Mr Bush?
Sorry guys just a grumbling old lady having a Fibro flare and really would rather not be. Want to be young and full of vitality and sleep for a change, free of pain and yadayadayada. Bad, sad day. Fibro day.