Has it really been that long ?????
So what was suppose to be a week has turned into 6 going on 7 weeks, fuck me.... So much has happened since my last post, when i read it and thought about what I've been through since then it almost made me wanna cry. There are so many side stories to all of this but first ill try and fill you in on the last 4 weeks.
After Surgery number 2, which gave me a scar across the top of my head a few days later the discovered thre was some bleeding between my skull and my brain, this is not a good thing and so next thing i know im talking to a doctor about anesthesia, wait a minute...why am i talking to you? That's because you have a surgery tomorrow morning.....WTF... thanks for telling me.. so in i went for #3. It wasn't so bad really except again for the ICU which i now officially hate, i have never been so uncomfortable in my entire life. after a couple days there i got shipped back to my regular room and on the mends counting the days. Finally im told that friday is the day i can finally go home... that Thursday the 21st i guess i kinda over did it... and on the morning of the day i was to go home , i went to the bathroom , got really dizzy and collapsed. That friday when i was spose to go home, i found myself attached to a bottle again and diagnosed with pneumonia. SO more drugs, sweating like crazy..freezing....sweating and having a massive tempurature...grrrrrrr... after a few days the fever broke and things were looking good.
The next days were ok and the doctors were pleased with my progress and told me it looked like i could go home soon.... umm no casue i had a seceret...
When i first started this they had told me after the first sugery that one thing that might happen was damage to the bag of water your brain sits in.. its like a big world unto itself with your brain and spine.. if this was damaged the said water (spinal fluid) would come out of my nose like a faucet... well it had already happened and i was just hoping it was a runny nose from the pneumonia. they took a sample and the next day confirmed it was in fact spinal fluid... guess who's not going home...
to fix this there were 2 options... one was to pop open my skull again and patch the hole with muscle tissue from my leg... the other was to do a spinal tap and drain the spinal fluid enough to take the pressure away from the hole so it could heal. At this point my doctors were concerned about how my bod would react to a 4th OP in the space of a month so it was decided on the spinal tap and me in bed for 5 days .... oh the fun ... sleeping on my right side as to keep it from leaking and waiting..... waiting..... waiting knowing that if this didn't work they would have to cut me open AGAIN.....
Monday the 1st of October was the day the shut off the drain and wait and see for 24 hours to see if i leaked.... im happy to reports im dry as a bone, the removed the tap Tuesday and im told..... Friday if all is ok i can finally go home.... im here for "observation"... i guess its fun to watch me loose my patience i don't know.. but when your breakfast and dinner both consist of bread and cheese its hard to laugh to long... I've lost 17 kilos or roughly 37lbs on my tumor diet and due to being in bed for so long when i sit up for any length of time my neck revolts on me.
Reading this it really doesn't seem like that big a deal, and i guess in someway's it isn't, except for the surgeries where they literally removed half my brain and then put it back..that still amazes me. and if i was here by my self i guess it would have been a bit easier, but alas this is a hospital and thus i have had to deal with roomates and other lovely sick people. and that was not easy or fun.... more on that later i guess
Its Wednesday the 3rd of october and im just counting the days and hoping i stay together long enough to make it home, i miss my nest, i got a lot of work to do to get back in shape and its gonna take time i know but the sooner i get started the sooner i can be back to my life.... something i know have to change, i rekon the drinking will be a lot less for one and eat better too, but i guess those things are good things
2 more sleeps and im home hopefully..wish me luck
J