4 years of being sedentary and around 14 years of symptoms later...
It's official. Postural orthostatic tachycardia syndrome, hyperadrenergic type. I've moved to 60 mg extended release of the propranolol and am pretty close to symptom-free. We'll see how I feel once we successfully cut more of the unnecessary drugs out of my life; first step is the oxycodone (thank god); we're stepping down over the course of a month and I'll get to stop entirely on my birthday. Lovely coincidence, that.
I honestly never expected this. For all the times I started sentences with, "When I feel better..." it was really just a way to justify getting out of bed each day. I never believed it'd happen. I don't think I can explain how amazing it is to go from not being able to walk the less than 10 feet from my desk to the kitchen table each day to feeling perfectly healthy with a single little pill. I'm no longer wholly dependent on other people. It'll take some time to recondition myself and have some stamina back, but I can't say that I particularly care. The important part is that I'm better and after being so ill for so long I'd given up on the idea of it ever happening. I'm not even sure what to do anymore. But I am sure I'll figure it out.
I honestly never expected this. For all the times I started sentences with, "When I feel better..." it was really just a way to justify getting out of bed each day. I never believed it'd happen. I don't think I can explain how amazing it is to go from not being able to walk the less than 10 feet from my desk to the kitchen table each day to feeling perfectly healthy with a single little pill. I'm no longer wholly dependent on other people. It'll take some time to recondition myself and have some stamina back, but I can't say that I particularly care. The important part is that I'm better and after being so ill for so long I'd given up on the idea of it ever happening. I'm not even sure what to do anymore. But I am sure I'll figure it out.