Let's hear it for Aphasia!

Jan 26, 2007 21:49

I got a whole week of clarity, well, of improved clarity.

And then I get to the counter at Francesca's to order my coffee, and I can't explain what I want. The person behind the register is looking at me, I"m trying to say I want a medium coffee in a large cup, except that doesn't come out, and all I get is "large coffe, medium..." then I figure out ( Read more... )

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code_slave January 29 2007, 17:17:30 UTC
I'm really sorry you're having to deal with something so frustrating and discouraging. :-( I was glad to hear, though, about the barista in your story who seemed to know what was up, offered *helpful* help, but didn't make a big deal of it. I think that's the way to go - I find it helpful anyway.

I have had similar issues over the course of my experience with MS, and I really do understand it's different from the things that most of us deal with all the time - i.e. it's not quite the same thing as not being able to find the *specific* word you want to use... it's not being able to find a very common word, or any word at all. Perhaps it's like the difference between not being able to remember where you put your keys (a very common occurrence) and, say, not being able to remember the simple, everyday word for the thing that makes it unlocked when it's locked and you wanna go in. And I'm sure it's even deeper, and farther beyond my own understanding, than that. :-(

One of the things I find most frustrating is not being able to remember people's names sometimes - not the names of people I just met, or people I rarely see or hardly know... but sometimes my best friends. My coping trick for that, is that if I can't come up with the names I need at the moment, I'll make up other names, and hope that a) it will sound kind of like a joke, one of my little eccentricities and b) the person I am talking *to* will know, from the context, who I'm really talking about. "C'mon Honey... we'd better get moving... we have to be at... uhm... Steve and Edna's in 25 minutes..."

I hope you find some relief soon. You're a very strong woman... sometimes we all need to be reminded of that. A friend of mine once made me write it on a card and tape it to my mirror. A lot of people think a whole lot of you. Perhaps that helps at least a little?

:-D

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golemkennels January 29 2007, 19:29:21 UTC
Thank you. It does, a bit.

It is very much like not having the codeword or the key to unlock what you need to know or say. At other times it is...spatial for me, and I'll have bits an pieces but nothing connecting them, they are just floating there.

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