Finally... A diagnosis!
It's official. Fibromyalgia, Benign Hypermobility Syndrome, and Chronic Fatigue Syndrome. I can now point at something, say, "This is what is wrong. I'm doing something about this" and know that their might be a light at the end of the tunnel.
It's not the best news in the world, of course. There's no "cure" - they can only treat the symptoms. But it's not anything that's going to kill me, and with the treatment my quality of life should improve. The rheumetologist warned me not to expect overnight miracles (which I don't) and gave me a prescription for mild muscle relaxers to help me sleep. She said I might start to see improvement in 3-6 months.
But at least I know what's wrong.
Dr. Romanick was very nice, and we talked a lot about my FM onset time, which was back when I had my kidney infection 10 years ago. (I've really been going through this 10 years?!?!) The depression I experienced for the months after I got out of the hospital was probably FM onset related. HMS I've probably had since a child. All those "sprained" ankles as a kid... My super flexibility isn't actually good or right for my body, and is what is causing a lot of the pain in my joints, especially my hands and feet. CFS - hard to say when it started. She thinks it might have started at the same time as the FM, as they are often linked.
I follow up in 6 weeks to see how the pills and PT are doing.
I found a group of doctors who understand, and have a plan to help me! Pinch me... I must be dreaming.
It's not the best news in the world, of course. There's no "cure" - they can only treat the symptoms. But it's not anything that's going to kill me, and with the treatment my quality of life should improve. The rheumetologist warned me not to expect overnight miracles (which I don't) and gave me a prescription for mild muscle relaxers to help me sleep. She said I might start to see improvement in 3-6 months.
But at least I know what's wrong.
Dr. Romanick was very nice, and we talked a lot about my FM onset time, which was back when I had my kidney infection 10 years ago. (I've really been going through this 10 years?!?!) The depression I experienced for the months after I got out of the hospital was probably FM onset related. HMS I've probably had since a child. All those "sprained" ankles as a kid... My super flexibility isn't actually good or right for my body, and is what is causing a lot of the pain in my joints, especially my hands and feet. CFS - hard to say when it started. She thinks it might have started at the same time as the FM, as they are often linked.
I follow up in 6 weeks to see how the pills and PT are doing.
I found a group of doctors who understand, and have a plan to help me! Pinch me... I must be dreaming.