Any advice?

Mar 17, 2008 00:53

Most of my stress these days comes from the fact that my family isn't completely understanding about my disease. My younger sister and brother don't consider me sick, because they can't see it. I have 2 older sisters with Lupus (one of which is actually on her deathbed), & my mom has Rheumatoid Arthritis. You can see their pain, swollen joints, and deteriorating mobility. I honestly don't understand how they can't see my pain, but maybe I'm just self conscious. When I'm in public I feel like everyones watching me hobble around. I have been accused of being lazy. My sister said something along the lines of, "well it's just really annoying, and I don't think you even try to do anything yourself". Does she honestly think she's the only one thats annoyed?! I'M LIVING WITH IT! I'd love to be active. I have 4 dogs that I'm not even allowed to walk, by doctors orders.

Does anyone have any advice on how to help people better understand what we're going through?
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