I got my letter of determination from the Social Security Administration today. I've been denied disability ( Read more... )

My sisters are in chorus at school, and their director, of all people, knows how hard up financially we are right now. My mom gives him a statement of our finances to show why they need to scholarship to cover the chorus costs they're supposed to help out with. We were pleasantly surprised to have him call us up and inform us that he'd asked his ( Read more... )

I've realized something about myself. I've known for years now that I have EDS - I was diagnosed at the age of 14 and have had to battle it out with at least one doctor about my diagnosis being correct and my deserving to be treated properly. I know that I have EDS, it's obvious. It's a part of who I am, and it's a part of my daily life. No matter ( Read more... )