Caregiver of a Dementia Patient

Apr 22, 2010 12:48

I feel behind the eight ball on this with my Mom.
The situation right now, should have been last year.  Meaning, someone living with Mom.
We are so behind.
This year is a whole new set of needs. I don't know how far we are away from 24 hour nursing care.

BUT, if none of us can see this decline in real time, how can we manage her care.
Last year, I mean ( Read more... )

dementia, family

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Here goes........ dads_skrink April 22 2010, 19:29:12 UTC
To be more clear.... you personally find it difficult to handle being care giver for 7 days in a row; as I understand things. If you had someone coming in or took Mom to a day-away place you would not have to rely on family filling in when you need assistance.
I totally understand your needs. That is why I suggest you give yourself more freedom by having someone come in.
Since you aren't receiving compensation, why would you need to work? I bet you could find much to do in the community if you had full reign. Things that you would enjoy and make your life more fulfilling.
You have volunteered to do something that I would not do. I am not judging you.
I feel you kind of by-passed my main point about finding where we will place Mom when she is no longer able to stay home. i.e. she cannot bathe herself or take care of her toilet habits. You clearly stated you would not do that- at our meeting. Rather bluntly, even.
I did not say. "Put her in a dementia unit"? I said, where will she go when the time comes. Do you know when that time will be? 2 months, 6 months, a year? If it isn't Hamlet, then we need to take care of that.
The Geriatric assessment was not a thorough enough study to determine what our mother has lost. I do not believe them and you shouldn't either.

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Re: Here goes........ redbaydreamer April 24 2010, 00:20:04 UTC
Sorry, I did not mean to by pass anything. I think Mom is content with the idea of Hamlet and it took us a long time to get her comfortable with that, so I think we stay with that. My last contact with them was let us know when you are ready and we will get her in as soon as we have a room.

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