Update on Aidans condition...
So it has taken me a few days to type this up, but finally.
I'm just going to recap what happened last week with Aidan for those of you who aren't up to date.
Sunday - Noticed a red rash forming on Aidans body, sorta looked like a heat rash maybe, we didn't really think anything of it. He had been having a weird cough for a week now (this coinsides later in the story)
Monday - 6:30AM -The rash had spread over his ENTIRE body. I was literally sitting there and watching this rash form. Within' an hour his entire stomach was COVERED in a red, bumpy, sandpaper feeling rash. Then his back, arms, neck, face, toes, everywhere. It was horrible. It reminded me of the measles!? Or something. He felt really warm, so I decided to take his temp. His temp was around 103.2
I called his family dr and made an appointment, so Justin came home early from work that day, and we took Aidan to the dr's. The dr did a strep test, and checked him out. Sent us home w/ an antibiotic.
Tuesday - Everything about him was getting worse. His fever had climbed to 104.7 and since Sunday he had nothing to eat, and BARELY anything to drink. We where literally forcing liquids on him. Called his family dr, and his regular dr wasn't in - but i spoke to another dr, and they told us to go to Bryn Mawr Childrens Hospital. So, we took Aidan down to Bryn Mawr hospital. There they drew up blood and started an IV. The DR (whom was suppose to be a pediatric dr) came in, said "he seems like he might be a little dehydrated," gave him an IV for about 2 hrs, then sent us home. What killed me was they wrote out discharge instructions and they said "IF HIS FEVER REACHES ABOVE 101.1 BRING HIM BACK TO THE ER," Well, we where at the ER and his fever wasn't even below 101.1 so i don't understand why they let us go!~?!?!?
Pissed off and tired, we left because there was nothing else further they were going to do for us.
Wednesday - my oh my, Wednesday. This day took the cake for me. Struggling all week with Aidans "mysterious" illness, I was going everything I could to keep him comfortable, cool, and hydrated. I checked his fever around 2PM or so and it had climbed all the way up to 105.5!!! I put him in a cool bath, but only for about 5 mins cuz he started shaking and I was scared.
I sat on the couch w/ him wiping his body down with a cool rag, and all of a sudden he stared shaking really bad, his eyes rolled into the back of his head, and his skin felt like it was on fire. I jumped up holding him, crying, because I was scared, but trying to compose myself, looking for the phone to call 911. I called 911 and it took them 15 mins to get here. I called my mom and I called Justin and my mom left her house (a 45min drive) and Justin left work early again. Finally the ambulance arrived and they rushed me and Aidan to the Montgomery County Hospital. I didn't know what was happening or what to do I was so scared I literally thought Aidan was going to die right there in my arms.
They took us into the emergency room, and this rude old nurse came in and she looked at me and said in the most rude tone every, "DONT HOLD HIM! IF U WANT HIS FEVER TO GO DOWN U NEED TO JUST SIT HIM ON THE BED." So, I did what she said, thinking 'she knew what she was talking about?'
Then she took his temp and he was crying, and she said to him, "OH CHRIST SAKES, STOP CRYING!" I couldn't believe this women!!! I know I should have said something, but I was so much in disbelief and overwhelmed with everything else I was dealing with.
So another nurse came in, and Aidan was so dehydrated that she poked him twice trying to get blood and she couldn't, infact, the one arm she ended up blowing the vein and u could see his arm looked like there was a small golf ball inside of it. (We have pictures to show the bruises he now has)
Finally, Justin and my mom showed up, and another nurse came in and he tried to get blood twice and couldnt. He stuck Aidan in the foot and thats where they finally got a vein, but it was too small to draw blood, so they just ran the IV in his foot. The DR came in to talk to us, and said that Aidan had SCARLET FEVER. So we sat there for hours, while Aidan got his IV fluids, and we wnated to get him admitted to a hospital, because he wasn't eating or drinking anything since Sunday, and the DR told us "UNLESS HE IS SEVERLY DEHYDRATED WE CAN NOT ADMIT HIM ANYWHERE," and they sent us home.
Thursday - I was doing everything BOTH of the hospitals told me to do, and nothing was working, Aidans fever wasn't breaking, it just kept jumping up and down and he was so lethargic. My mom came and picked us up, and we went to his family DR. His family DR informs me, that the DR we saw at the BRYN MAWR hospital indeed was NOT a Pediatric DR it was just an ER Dr!? So of course that pissed me off. She noticed that his symptons had changed since she saw him on Monday. He now had red blood shot eyes, a VERY red sore throat, a 'strawberry tongue', BRIGHT RED dry/cracked/bloody lips, swollen hands/feet.
She told us it looked like Kawasaki disease. She had Aidan admitted down to DuPont Childrens Hosptial in DE. So we got there, and it just killed me we had to go to two different hospitals and end up in DE for him to get the care FINALLY that he should of had DAYS ago.
As we where there waiting for a room to open up, I just started crying. I was so mentally worn out and I wanted to trade places with Aidan so bad. He was so hopeless and I know he was in so much pain and it hurt me so much to see him like this. Justin had to leave that night to go to work the next morning so it made it even harder for me to be alone.
We stayed in the hospital from Thursday night - Saturday afternoon.
They diagnosed him with the KAW's disease. They caught it early enough, they w/ the help of the fluids from the IV they gave him, he was able to fight it on his own. It was long, but he was able to. They didn't want to treat him w/ the medicine that they normally would treat a patient w/ this condition because his fever had broke and as young as he is there are serious side effects. So finally the DR let us go on Saturday.
Aidan is on a "TWO WEEK INCUBATION" period. So he seems to be doing okay now, but I have to follow up with his DR on Wednesday. So needless to say, Justin and I are looking into a lawyer because we are very unhappy on the way things where handled and he should have been treated on Tuesday originally while we where at the FIRST HOSPITAL, not the THIRD.
Thank you so much to everyone for your prayers and concerns this was indeed very difficult for Justin and I, and Aidan as well.
If anything changes i'll let yall know.
Love ya,
Jasmine