Comments | aspiemama: Newsflash re: Comments

aspiemama

Newsflash re: Comments

Jan 18, 2011 23:51

I am really notoriously stubborn about comments. I refuse to post them unless I really like the comment or the person identifies themselves. I have had far too many problems with trollish comments. Well, apparently now LiveJournal lets you comment using your Facebook or Twitter accounts. And it all counts as identifying yourself! So, YAY for ( Read more... )

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Multiple chemical sensitivity wosny January 19 2011, 10:55:13 UTC

Hi, Jenni, I was worried that I had never heard of this diagnosis, and the symptoms seemed a bit...well, non specific, and so I googled it. I wonder if you have read this article, as I wonder whether the person who diagnosed you was really being honest with you.
http://www.quackwatch.org/01QuackeryRelatedTopics/mcs.html
It sounds like Bad Science http://www.badscience.net/about-dr-ben-goldacre/to me.

Re: Multiple chemical sensitivity aspiemama January 19 2011, 19:18:35 UTC

It may seem quackery to you, but I can guarantee you that it is real. I was diagnosed 10 years ago and am well familiar with it by now. Exposure to chemicals like perfumes makes me very ill. I have had to be carried out of church on more than one occasion because of exposure to perfumes. Whether or not you believe it is your choice. No one believed me when I was first diagnosed and I was one of only 3 in my congregation who suffered from it. In my current congregation there are about 10, though none are as vocal as I am ( ... )

Re: Multiple chemical sensitivity wosny January 19 2011, 21:43:28 UTC

Mmm, I have to say that as far as I am concerned Fibromyalgia and Chronic Fatigue Syndrome are also quack diagnoses ( ... )

Re: Multiple chemical sensitivity aspiemama January 19 2011, 22:14:20 UTC

With all due respect, I resent the fact that you are blaming my health issues on my autism. That is precisely the type of closed-mindedness I am trying to rid the world of ( ... )

Re: Multiple chemical sensitivity wosny January 20 2011, 00:30:41 UTC

Wosny.......that was seriously obnoxious. I cannot believe you'd read someone's blog and then diagnose them with this range of psychological issues the way you've done. Why on earth would you assume that the physical reactions she's having to environmental chemicals is a psychological issue rather than a physical one?! You know.....sometimes things actually ARE what they seem. Smells perfume....has physical reaction = physical problem.

Re: Multiple chemical sensitivity wosny January 20 2011, 10:34:05 UTC

Wosny - this sounds as if you are giving flying lessons when you haven't been off the ground. With respect, there is a lot of pontification in your observations and you are juxtaposing two very different things: alcoholism is an addiction and not a congenital condition, unlike Asperger's Syndrome, which is congenital and nothing to do with addiction.
As you rightly say, someone has to want to change before anything can happen but have you considered than wanting is not always enough when the root cause is outside someone's control. In simple terms, a physically paralyzed person might really want to walk but wishing and trying desperately hard won't make it happen.
I live with someone with AS and if it were only a question of desire I don't think he would choose to live with the restrictions.

Re: Multiple chemical sensitivity aspiemama January 20 2011, 16:13:50 UTC

Just for the record, in case someone asks (because I know someone will wonder why there are so many anonymous comments here), Those who posted anonymous comments identified themselves to me over Facebook. That counts.

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