A long winter ahead
Every year.. I wait for winter.. it's not that I like it but I miss it.. I used to say that here is different from the rest of the world.. we only have 2 seasons.. 3 months of winter and a bloody 9 months of summer. but this year, I don't know, is it because of Yamashita Tomohisa that I started to smell the seasons ;) and differentiate between them. or is it because this year is the happiest in a long time. and even if I sound pessimist.. I'm way way positive and optimist than I have ever been.
All that said, I'm still thinking, this year, it'll be a long winter.
Aka-chan, Hussain, really has a very week immune against cold. Last week, he was starting to recover but one night, my sister forgot to cover his face when she carried him from the room he was sleeping to another room.. and we had to start over again.. 3 days ago we were just talking about him finally recovering and that his face is alive again, his strength is back again.. the next day, at 7pm mom sensed he is having a little fever so she immediately gave him his medicine to lower it and rushed to the hospital, 3 hours later his fever was almost 40 degree. the temperature outside is barely 18-20.. and this is what is happening.. what will happen when it goes down to 6?
I have been reading the books I got.. it's a bit depressing. not the informations in it but for how many times I read "talk to his therapist" "consult his doctor" "he may either have this or that.. in any case, talk to the therapist, he will help him overcome it". it's depressing that the only specialist clinic here is so useless.. giving us only an appointment every 6 months without any notion if we can visit inbetween.. and I know that they will request to reserve an appointment and that will be 1 month later.. if only they tell much info in this one in a six month visit.. or at least, let us ask them what we want to know about. we started his medications in one hospital that I really liked it's doctors.. they even call home to ask about him. but it was expensive so my parents switched to another cheaper one.. still have good enough doctors but whats different than the previous one is that they are changing his medicines way too often. at first, they changed almost everything from the previous hospital and now they are still changing some of them every 2 visits. whats this? does he have to take all the side-effects from all these? and they really don't tell us much of what to do.
I go to the pharmacy and look around throughly in the kids area to sea if there is any helpful thing invented. I discovered that little tool to help clean his nose. so helpful yo! it help him breath better in the night and speed his recovery. now I saw the air humidifier. I didn't know they sell it in the pharmacy near our house. I need to ask about his price and which kind is recommended.. hot or cold.
I also have been thinking to talk to my father about making a health insurance to Husain. Since his visits to the hospital are a lot.. it will help us save that money for his other needs.
I have been thinking a lot lately ^_^; and a couple of days ago I talked to my friend in Rome. a fatherly figure for me. and he told me that he has a friend who is specialist in Down syndrome and that he lives in Miami. he said that he is not sure if he will agree to help me but asking doesn't cost a penny. I'm really touched ;_; . this man never stopped taking care of me and helping me. he was just asking me when I'll be able to return to the community and I was busy, my mom health is not stable, my family members depend on me a lot and that I'm the only one who still has the time and the ability to read books about down syndrome and translate it to the rest of the family.. and just like that, he told me about this friend.
These Pictures were taken about 2 months ago. he changed now though..
He is playing with my head scarf ^_^
He looks like an obaasan haha
more under the cut
Peace!
All that said, I'm still thinking, this year, it'll be a long winter.
Aka-chan, Hussain, really has a very week immune against cold. Last week, he was starting to recover but one night, my sister forgot to cover his face when she carried him from the room he was sleeping to another room.. and we had to start over again.. 3 days ago we were just talking about him finally recovering and that his face is alive again, his strength is back again.. the next day, at 7pm mom sensed he is having a little fever so she immediately gave him his medicine to lower it and rushed to the hospital, 3 hours later his fever was almost 40 degree. the temperature outside is barely 18-20.. and this is what is happening.. what will happen when it goes down to 6?
I have been reading the books I got.. it's a bit depressing. not the informations in it but for how many times I read "talk to his therapist" "consult his doctor" "he may either have this or that.. in any case, talk to the therapist, he will help him overcome it". it's depressing that the only specialist clinic here is so useless.. giving us only an appointment every 6 months without any notion if we can visit inbetween.. and I know that they will request to reserve an appointment and that will be 1 month later.. if only they tell much info in this one in a six month visit.. or at least, let us ask them what we want to know about. we started his medications in one hospital that I really liked it's doctors.. they even call home to ask about him. but it was expensive so my parents switched to another cheaper one.. still have good enough doctors but whats different than the previous one is that they are changing his medicines way too often. at first, they changed almost everything from the previous hospital and now they are still changing some of them every 2 visits. whats this? does he have to take all the side-effects from all these? and they really don't tell us much of what to do.
I go to the pharmacy and look around throughly in the kids area to sea if there is any helpful thing invented. I discovered that little tool to help clean his nose. so helpful yo! it help him breath better in the night and speed his recovery. now I saw the air humidifier. I didn't know they sell it in the pharmacy near our house. I need to ask about his price and which kind is recommended.. hot or cold.
I also have been thinking to talk to my father about making a health insurance to Husain. Since his visits to the hospital are a lot.. it will help us save that money for his other needs.
I have been thinking a lot lately ^_^; and a couple of days ago I talked to my friend in Rome. a fatherly figure for me. and he told me that he has a friend who is specialist in Down syndrome and that he lives in Miami. he said that he is not sure if he will agree to help me but asking doesn't cost a penny. I'm really touched ;_; . this man never stopped taking care of me and helping me. he was just asking me when I'll be able to return to the community and I was busy, my mom health is not stable, my family members depend on me a lot and that I'm the only one who still has the time and the ability to read books about down syndrome and translate it to the rest of the family.. and just like that, he told me about this friend.
These Pictures were taken about 2 months ago. he changed now though..
He is playing with my head scarf ^_^
He looks like an obaasan haha
more under the cut
Peace!