Apr 26, 2013 15:29
So after spending most of this week with mom at her different appointments, she was diagnosed with something else... It is called Jo1 and it has relations to Polymyositis. Because the Prednisone is killing her slowly, the Rheumatologist is trying to lower the dosage by putting her on Methotrexate injections and back to the IVIG. The first time she had the IVIG infusion two days later she was hospitalized. Right now, I'm at a loss because there aren't any other alternatives. I understand, everything has side effects but I just want the best for mom. I don't know what's going to happen next. I'm no doctor but I have my notes and recordings to be prepared if I need to discuss with a medical professional. Her Cardiologist agreed on her continuing the IVIG infusions, seeing as Prednisone has an excessive amount of side effects. She has been drinking a dose of 20 MG a day for the passed 8 years. She has gotten so many other things because of it... I won't be around much for awhile. I have too much on my mind and I feel so alone. I will stay strong though, if only for mom. Take care everyone, those who know my number know how to reach me best. I'll answer when I can.
I'll update the longer detailed version later... but this is the gist of it. I'll be around, just not Facebook so much. There is something about reality that just icks me. I feel as if I never win... Either way, more updates in the future.
mum,
doctors,
life issues,
sick of life