Just some bitching...

[_sailorstar_]

I feel bad for not updating. I feel bad in general. I seem to be getting worse and not better at all. All these different meds, and no help. Its beyond frustrating. I want to talk to my specialist about it. Like maybe Ive been misdiagnosed. Yeah I wish. I wish she would say..oh yeah you dont have RA. You have something easily treatable or curable.

Comments

[_sailorstar_]

Thanks, I actually made that layout for a freind. Mine is up now. I did try plaquenil, but it gave me the most horrid headaches EVER. So I was taken off of it. I appreciate your info, Im just about fed up with these drugs and thier side effects. With disease its really the lesser of 2 evils. There really are no "good" drugs for people with RA.

[_sailorstar_]

Yes I am thankful that there are more options now, but they come with a price. The side effects are horrendus. Plaquinil can make you blind, you have to get an eye exam evey 6 months while taking it. Methotrexate can cause liver failure and swelling of the lungs, so you have to get blood tests every 2 weeks at first and then every month (that was fun), plus you cannot have 1 single drop of alcohol while taking it (those are just a couple of the side effects. It is also used to cause spontanius abortions in egtopic pregnancies

[_sailorstar_]

I wish my insurance coverd "alternitive" stuff but it doesnt. Sometimes I wish I were in canada, just for the health care. I understand that your dad is probablly really excited about new treatments, even my nurse at my spevialist office was saying that about how there used to be no effective treatment. And Im sure there are people who only get minumal side effects and I envy them every day. Apparently (according to my specialist) because I have fibromyalgia, I have drug sensitivities, which means I get all the fun side effects. Im almost to the point where Im just going to let this disease do what its going to do to me and not do anything about it. Of course that is terrible to think, buts its hard to keep hoping that the next thing will work or that Ill even be able to tolerate it. I had to quit taking enbrel (the latest one) because it wasnt working and when I gave myself the shot I wouldnt be able to get out of bed for 2 days. And I had to do this twice a week. I have a 3 year old, and no one to help me, so I cant do it. I always

[_sailorstar_]

LOL Ive done that dance and boy Im sore in the morning!