I'm not posting this to garner sympathy or whatever, I'm just doing this because it helps me arrange my thoughts and sort out my feelings, so here goes
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*hugs* I think it's the same with people who has asthma, right? we don't know when it will attack. But we try to live with it just because that's just how it is. I'm glad you're sharing these things with us, it makes us know you better. hang in there, Lyds! Love you.
Yes, that's the scary thing about asthma. I haven't had it before, but I can imagine how not knowing would be frightening!
I only have a mild case of EDS; I can still function, it's good. There are people who don't just sprain; they dislocate. I can only imagine the pain they're going through; it must be so much harder for them if it's already this tough for me :\
That's...........tough. *rubshoulder* Thank you for telling us this.
Am sorry, in situation like this, I already confuse myself with what appropriate to say and not to. If what I say/write is hurting you, please tell me. I wanna avoid of words that what may hurt people unintentionally.
It's not I dont understand you, but I also have 'my pet'. Asthma and something which I dont know what the disease is called (our health care is not very supportive). Like, everytime, I carry soemthing heavy, my shoulder and back will hurt.
It's the 1st time I heard that disease. It's ....... not something to live with, it. The liltle small things, like opening door, jar. We never would have thought those would be a very hard and difficult for someone (with this disease). We just wouldnt know to what extend illness can bring us pain and strength.
My case of EDS is mild; there are people out there with the same disease who can't walk, and who don't just get a sprain - they dislocate their joints every day, and it's far more painful for them. Some of them need a neck brace because the big joint holding their head to their neck has gotten too weak for them to be able to hold their head up naturally. That could be me in fifty years, we'll never know.
Sorry to hear you have asthma. It's probably something that will pester you for a long time. I hope you find some relief for it!
Some doctors don't even know about EDS, so don't worry, you're not alone. Again, I'm grateful that I'm struggling with day-to-day motions; it's still possible for me to do them. There are others who can't perform them at all.
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I only have a mild case of EDS; I can still function, it's good. There are people who don't just sprain; they dislocate. I can only imagine the pain they're going through; it must be so much harder for them if it's already this tough for me :\
Love you too! Hope your day is going okay!
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*rubshoulder* Thank you for telling us this.
Am sorry, in situation like this, I already confuse myself with what appropriate to say and not to.
If what I say/write is hurting you, please tell me. I wanna avoid of words that what may hurt people unintentionally.
It's not I dont understand you, but I also have 'my pet'. Asthma and something which I dont know what the disease is called (our health care is not very supportive).
Like, everytime, I carry soemthing heavy, my shoulder and back will hurt.
It's the 1st time I heard that disease. It's ....... not something to live with, it. The liltle small things, like opening door, jar. We never would have thought those would be a very hard and difficult for someone (with this disease).
We just wouldnt know to what extend illness can bring us pain and strength.
Reply
My case of EDS is mild; there are people out there with the same disease who can't walk, and who don't just get a sprain - they dislocate their joints every day, and it's far more painful for them. Some of them need a neck brace because the big joint holding their head to their neck has gotten too weak for them to be able to hold their head up naturally. That could be me in fifty years, we'll never know.
Sorry to hear you have asthma. It's probably something that will pester you for a long time. I hope you find some relief for it!
Some doctors don't even know about EDS, so don't worry, you're not alone. Again, I'm grateful that I'm struggling with day-to-day motions; it's still possible for me to do them. There are others who can't perform them at all.
See you around, and have a nice day!
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