(no subject)
From the IAPP daily newsletter:
A Harvard University Medical School study will make available to the public the sensitive medical information of 10 people, with their consent. Participants in the Personal Genome Project, reports the New York Times, have agreed to share their disease histories, allergies, medications, ethnic backgrounds and other personal information, including their decoded DNA and photographs. The "PGP 10"--the first 10 volunteers in the project, including a well-known technology venture capitalist, a prominent psychologist and a university professor, have forfeited their privacy to demonstrate the usefulness of knowing our genetic predispositions. The idea is that the availability of genetic information will speed medical research, but getting there requires a changed attitude towards privacy.
As a certified privacy practitioner, this freaks the heck out of me.
A Harvard University Medical School study will make available to the public the sensitive medical information of 10 people, with their consent. Participants in the Personal Genome Project, reports the New York Times, have agreed to share their disease histories, allergies, medications, ethnic backgrounds and other personal information, including their decoded DNA and photographs. The "PGP 10"--the first 10 volunteers in the project, including a well-known technology venture capitalist, a prominent psychologist and a university professor, have forfeited their privacy to demonstrate the usefulness of knowing our genetic predispositions. The idea is that the availability of genetic information will speed medical research, but getting there requires a changed attitude towards privacy.
As a certified privacy practitioner, this freaks the heck out of me.