Mar 25, 2005 15:45
Doctor gave me my "official" diagnosis yesterday-- says he's still not sure what it is, but it's close to lupus, so we'll just treat it like that, he says. He says it's bizarre because it's sort of acting like lupus, but I'm not showing a lot of the signs of lupus and it's attacking my nerve tissue (which isn't as common as attacking other parts of a person's body, I guess). Anyway, I'm now on Placquenil, Imuran, and Oxycontin. I'm still on Prednisone, but we're slowly lowering the doses and I'll be off in about a month.
The Oxycontin makes me not able to feel my face. I hear it's habit forming and I'm a touch worried. I can't drive for a little while until my body gets used to it... and I can see why. It really fucks me up. I took one at nine this morning and I can still feel it. But damn, it makes my leg feel so much better. My back, too. And I successfully took my housing test while on it, so... I think I'll be okay.
OH, and the doctor says I'll be walking without the crutch in five years. FUCK THAT! I'm going to work my ass off and see if I can do it before then. I really, really think I can, too, if I work hard enough. I miss rock climbing.... so anyway, I start physical therapy next week or the week after, and I'm going to start building back my strength. He says my legs will never get completely better. I'll always walk with a slight limp, and I'll never get some of the feeling back. I'm okay with that-- I just want to be able to walk again. BEFORE FIVE YEARS.
GO ME.